before diagnosis

hi im new to this so ihope i dont ramble to much… im a 49 year old woman who has recently been having a lot going on health wise, i have been registered partially sighted recently, i have sight problems obviously, i also suffer from numbing down the right side of my face which i actually thought i had a stroke, i also have bad pins and needles in my arms hands and feet, im very unsteady on my feet have terrible dizzy spells etc…etc… i was sent to see a neurologist who basically said i was showing signs of ms the tests were done i had mri, lumbar puncture and vep, alll that came back clear.??? now he said hes not conviced with the results and is sending me to have more tests done in a movement disorder clinic, i also have a lot of tremors and cramping. the neuro also said that ms does not always show its face in tests immediately, but he wants me to to and have other tests just to make sure its nothing else… does this mean it could still be ms im so confused.

i would be very grateful of any information

thanks xx

Hi new user, I can’t help you understand things better - but just to say that it is normal for things to take some time to be diagnosed MS and other neurological disorders can take their time to show up in tests. It sounds like your neuro is taking good care of you, and it is so hard to be patient when these things take so long to get sorted, but it sounds like he is doing everything he can to get to the bottom of things for you. Leah :slight_smile:

HI

I was in a similar situation to you. I went to the doctor as I was suffering from L’Hermittes,among many other symptoms he referred me to a neuro. As my mum and brother both have MS i went to see their Neuro.

All my test came back clear. My Neuro was not convinced and has gone ahead with the diagnosis. I am now on Rebif. I have to put trust in him and I would suggest you do the same it sounds as though he really wants to help and wants to get to the bottom of things.

Best of Luck

HI

I was in a similar situation to you. I went to the doctor as I was suffering from L’Hermittes,among many other symptoms he referred me to a neuro. As my mum and brother both have MS i went to see their Neuro.

All my test came back clear. My Neuro was not convinced and has gone ahead with the diagnosis. I am now on Rebif. I have to put trust in him and I would suggest you do the same it sounds as though he really wants to help and wants to get to the bottom of things.

Best of Luck

Hello all

Thank you so much for your replies being in limbo is the worse thing as what ever this is has really affected my health and my everyday day tasks are exactly that TASKS…

I just wonder what else this could be if not m s, it’s driving me crazy I just want a diagnosis and why it seems to be affecting so much of me.

But thank you all once again

Xx