Some of you may remember i took my delivery of Rebif on the 25th June. That will be 3 weeks ago on Tuesday. I have still had no contact from any nurse (Rebif or MS) about starting. I have left a message for my nurse on her voicemail and the main switchboard, to no avail.
I have spoken to my patient services co-ordinatior at Bupa home healthcare, who contacted my nurse and said i should hear from her in a couple of days, and said she had no idea why my nurse hadn’t arranged things, that was on Tuesday and still no word. I know the nurses are busy and don’t want to keep nagging her, but at the same time thought i’d got past the limbo stage.
Did anyone else have this big wait between getting your drugs and starting on them? I have another delivery coming on the 23rd July (2 days before my birthday :-(). Am i being unrealistic about waiting times? Just feeling lost with it all, was all geared up for starting and now feel i’m loosing momentum, it’s starting to affect my mood.