Hello - Newbie here - and just been diagnosed a week ago with Balo’s Concentric Sclerosis - or “MS Lite” as I like to call it.
One night in August I lost my speech and cognitive skills - just like that - rushed to hospital - but through my own bloody mindedness my speech came back, I practised typing, texting and writing and I crossed the USA on a Roadtrip just 10 days afterwards … now firing on 90% of my cylinders . MRIs revealed one lesion/scar/flair on the left lobe - where language is stored.
Follow up MRI in October showed a change in the Flair and the Oxford Boffins were asked for a second opinion. Sleepless nights ensued as still no diagnosis. 28/11/2017 - the day my life changed - as I was formerly diagnosed with Balo’s Concentric Sclerosis. 1 scar 1 symptom , but will inevitably progress and develop a new symptom within 2 years - and then my MS Lite can be diagnosed as “MS Proper”. I have bought a years supply of Vitamin D3 from the Chiltern MS Centre on the way home from the hospital … which will last a year and take me to Oct/Nov when I will have a follow up MRI and Consultation with the Neurologist to see how things are behaving within my Brain.
So here I am still trying to take it all in - a 40 year old - fit and healthy woman who is now extremely tired - I used to be a night owl, but I am in bed by 10pm most nights since the attack. Thought I would ask for advice as my boss - who is lovely - has asked me what the workplace can do for me. Right now - not much at all - as I don’t want them to monitor my every move. I have explained the next attack could be anything from imbalance, pins and needles and numbness… or my speech goes again. I still slur and stammer when tired or anxious. What shall I tell her and my team ?
Thanks for any advice.