I have ppms, been prescribed baclofen because of my tremors and muscular stiffness in right leg, which means I can fall at any time. I also have severe numbness from neck to hands so can’t tell if something is hot, or ant tell if I am holding anything in my hands. Also registered partially blind now. Depression is of course coped with on a daily basis. Has anyone used this drug and does it help or work.
Hi
I take baclofen for spasms and spasticity and although they don’t stop it completely they take the edge off it. I would mention that when I started it was on a low dose and I increased the dose very slowly.
For tremor I take propanalol.
Hope this helps
Pam x
Hi there
I’ve had PPMS since 2006 and use Baclofen for spasms, leg twitching etc. Just 10mg a day; that’s one tablet. If I should forget to take a tablet, that’s when I notice it. I recently saw my GP and suggested Sativex for muscle spasms (that’s a cannabis substitute now legal in the UK) but my health authority don’t prescribe it even though NICE say it’s okay to prescribe. A course costs £370! Like I’ve got that money spare…
My GP told me our local authority won’t fund Sativex either. The licence (or something like that), to the surgery is too expensive for the very few patients with PPMS. I find it contradictory and unfair how different meds are prescribed. Yet I’ve heard another surgery will prescribe Sativex at cost of £60 per script. I had shaking hands, then leg jerks began, Eventually I even had head wobbles around 4 years ago. My MS nurse prescribed Propranonal 10mg to help to control the tremors. My hands still shake pretty much all of the time but gentler, the other tremors have stopped. The MS Nurse was very experienced (retired last year) but told me Propranolol was really the only option for PPMS. Baclofen was mentioned, but dismissed as more suitable to RRMS. I’ve only tried Proproponal and can confirm it has helped to stop most, but nothing seems to stop my hands from shaking. Bit of a lottery and certainly unfair. Good luck Chrissie xx
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