Baclofen versus Botox?

Has anyone got experience of using baclofen for spasticity muscle symptoms of RRMS?

My left quad is very tight and affects my mobility in my left leg.

I’m having hydrotherapy sessions weekly at the moment which I am loving (either the sessions are helping or it is the mere warm temperature of the pool that I find vrey welcoming lol), but my physio has suggested that I may want to consider trying a mild botox injection in my quad. I’m undecided at present, but prefer the sound of it as oppose to baclofen which seems more instrusive and longer lasting - so if it goes wrong, I have to put up with the symptoms longer.

Any recommendations or advice would be gratefully received x :slight_smile:

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100% botox for me. Baclofen affected all my muscles - where some stiffness helps my balance and walking. My botox targets just my quads and calves and really helps. The dose was slowly upped over a few sessions every 3 months. Plus it wears off around the 2/3 month mark.

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Thank you @Dave1979 …that’s really helpful to me and kind’a reflects my own throughts about botox.

I’m going to give the botox a go….

May I ask you what type of MS you have? Mine (RRMS) affects my balance and mobility on my left leg, so I use a FES device when I’m teaching and can be bothered to hook it up and find the right spot! But I’m really quite reliant on my walking stick now to keep me upright so this botox suggestion sounds promising..

Thank you again :slight_smile:

Primary progressive since diagnosis in 2021. Although after a barrage of tests since then it may be getting changed to MND!

I use FES on both legs but they are wireless so really easy to chuck on and off.

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Wow! Wireless FES @Dave1979 !!

How do you manage to get wireless - I’ve been asking for ages about that!

What’s MND? Sorry for lots of questions - you are a fountain of knowledge lol

Feel free to ask me anything lol

Apologies - I’ve just looked MND up - my apologies for asking, I hope you get a positive outcome - sending you best wishes x

Thank you. I just purchased the FES myself through Neurophysio Scotland. £2800 x2 but I had tried out the ancient NHS ones with the foot switches and all the wires and there was no way I was going to use them regularly with all that faff! The brand is Alfess

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Gosh @Dave1979 …not cheap then!

Yeah they are a load of faff with all the wires and quite limiting too. As a girl, it makes wearing skirts almost impossible.

Thanks for the brand name though ..I will continue to hunt for them alternatively, who knows, I may even try and make make my own.

The wireless ones are good then? Are you quite mobile with them then?

I wish they would help with balance issues..I’m looking forward to Botox results. :face_with_monocle:

I like them and they really pull the toes up. Takes about 5 minutes to get them both on and set up to go in the app. You use the app to adjust the power up and down or set it to walking or training mode. There is a proper remote too if you prefer over using your phone.

Sounds great! - but out of my price range :frowning: