I’ve posted this here as well as on the newly diagnosed and undiagnosed forum in the hope of advice & support from anyone who has been through this stage!
I’ve eventually managed to persuade my GP to sign my ‘Fit for Work’ paper on a phased return basis - I’m going back next week!!
Now I’ve got my own way I’m feeling rather scared & anxious!!
I’ve already been dealing with disability for 16 years after spinal injuries due to an RTA but have never really had to ask for ‘official’ support or concessions. I’ve always worked flexibly and have a parking space etc.
But the new more neurological symptoms that have been developing & getting progressively worse over the last few years - with at least 3 clear ‘relapses’ are a diifferent kettle of fish!
I’ve been off 3 months this time and was hoping (ha!!) that I would have had all the tests, the diagnoses and the treatment all sorted by now!!
Work is arranging a meeting and risk assessment when I go back and my GP will be sending a ‘report’ when they get chance - but I don’t know what to say/ask for etc because:
I’m undiagnosed as yet
The symptoms are so unpredictable!
I’m a lot better than I was a few weeks ago - I couldn’t have worked at all - but I know I’m still ‘ill’. I’ve been pretty well housebound for the last 3 months - last weekend was a test as I went camping for 2 days & have been useless for the 3 days following it!!!
At the moment the worst things are the fatigue, stiffness & heat intolerance/perception
I’m going to ask if I can work from home as much as possible. I don’t want to reduce my hours or my workload!
Any advice on:
How to explain things - do I explain everything as if I do have MS? My symptoms/history are very very 'MSlike". Then I can give them clearer information etc (they know that MS is a strong possibility)
What should I ask for???
Managing my symptoms? - I’ve still not been given any meds because of my enlarged pituitary gland - the docs don’t want to do the wrong thing I suppose
Anyone know of any good advice pages etc on ‘back to work’ in these situations - particularly for limbolanders??
Any help would be awesome!! xxxjenxxxx