Righto, a weird one this. You know about me and how over the last 2 or more years I’ve had MS symptoms. I had MRI, this showed lesions. Well, last month I had another MRI. I’m told by my doctor, ‘I’m sorry, it’s MS’ ? Well…this is where it starts getting weird.
I had an appointment with my Crohn’s disease specialist. Me and my husband told him that I wanted to come off Humira ( my Crohns treatment) as I’d been on it for 6 years and as my Crohns was fine, why not? He looked at my new MRI results. He said ’ it’s not MS’ !!! After bursting into tears, I asked how is that and he said, the lesions have not changed since the last MRI. The LP showed no signs, and the eye test and flashy light thing all showed negative,; this is the first time we have been told these results, some of them were done 2 years ago !
so, after the most relief I think I’ve EVER felt in my life, we chatted about the possibility that the Humira may have caused the lesions in my brain and the Neuro symptoms. I mean, every symptom is classic of MS ( probably why they told me I had it). So ! The upshot of it is, I am now off my injections to see if it is the injections causing it. I’ve been told that I should see an improvement within the month if it’s the Humira. Meanwhile, I’m going to be going through the worst withdrawal until it gets out of my system. I’ve got 2 months without the treatment, if my condition improves…there’s our answer. If not, by that time I will be seeing my Neuro. Now it’s just time to wait and see.
when I last saw my Neuro, he said ’ if it’s not MS, it’s one of 2 other things that aren’t so nice’. Well, I’m hoping that that isn’t the case now after the new MRI. As for my doctor who told me I have MS…he got that one wrong!
I hope this essay(lol) gives hope to others. They got it so wrong with me, despite them telling me that I have MS. Of course, I’m being objective at the same time until I hear it from my Neuro’s mouth, I’m not daft. But, I do have the glimpse of hope that I’ve not had before.
i will keep you all updated as I hear any news, but I’m keeping my fingers crossed
i hope you are all alright