I’m new to the forum and after lurking for a little while I wanted to say hello and also ask for some advice please!
I’ve had some symptoms for a few months that my GP felt were consistent with MS so he referred me to a Neurologist - I had my assessment a couple of weeks ago and the consultant said that my symptoms are caused by an inflammation of the spinal cord, but he needs to find out if it’s a one-off event caused by an infection, or if it’s caused by an auto-immune disease such as MS or lupus. I’ve got an MRI with contrast on my head and neck tomorrow, and then my results appointment is in about a month.
From looking at the symptoms I’m pretty certain it’s not lupus, but my symptoms really closely correspond with transverse mylitis (which I think is just the technical term for spinal cord inflammation but I’ve confused myself with researching online!) or MS, so I’m anticipating that the consultant will either give me an MS diagnosis or tell me that it may just be an individual “attack” of transverse mylitis and monitor me in case I have further attacks that could mean I’m developing MS (I probably just explained that horribly, sorry!).
Emotionally I’m doing ok at the moment, but my symptoms have been increasing over the past few weeks and are starting to impact on my day-to-day life more than before. The symptoms that are causing me the most difficulty at the moment are:
Fatigue (I’ve become completely exhausted and am struggling with my normal tasks).
Brain fog (I’m guessing it’s linked to the fatigue, but I’m struggling to concentrate and I keep losing my train of thought or forgetting words - I’m normally really on the ball and feeling like I’m not on top of things is really difficult for me).
My legs (they often feel really heavy, and walking (especially up stairs) is more of a struggle - they also feel really weak and jelly-like as though they could give way at any moment.
Numbness/tingling in my right hand/arm (I’ve had this from the start but sometimes the sensation is more uncomfortable than at other times, and it’s bordering on pain rather than just discomfort at times).
I obviously can’t be medicated until I have a diagnosis, so I wondered if anyone has any advice for dealing with the above symptoms please? I’ve been doing what I can to manage them (resting/sleeping more, walking slower and shorter distances, avoiding stress/upset as it seems to be a trigger, making lots of lists to help me remember things/be more focused) but I’ve now got to a point where I need something more because the symptoms have worsened.
I’m a 31 year old female in case that’s relevant!
Any advice you can give would be greatly appreciated