I have been on Avonex since June and on the whole am doing okay with it - less than 1/4 weeks “bad” - perhaps not as few as 1/8 but not many more.
Over the last 6 weeks though I have had flu like symptoms every week . They usually kick in around 1.00am-3.00am after doing my injection around 8.00pm-9.00pm (I take paracetamol before going to bed) and last for 1-2 hours. In the grand scheme of side effects I know its not the end of the world and they do eventually pass after some painkillers (more paracetamol and sometimes ibuprofen for good measure) but its significantly disrupting my sleep and is so, so uncomfortable. I’m talking cold sweats, shivering, aching bones, skin sensitivity, general aching - the pain is so severe sometimes I can’t get up to use the toilet.
So I’ve put up with it for a few weeks (it only ever happened 3 times before this bout and was never as significant) but wondering if anyone has encountered the same and has any strategies for tackling it.
P.S has anyone encountered the pen jamming/misfiring? That happened last week and wasn’t so much fun (a lot ended up on the floor and resulted in a larger than, what is sometimes normal, bruise).
Any tips gratefully received.
Thanks in advance,