hi everyone…it’s been a while since I have posted on here…
i am undiagnosed …poss spinal injury or neuro condition …anyway I have developed an over active bladder …about 18 mtgs ago…in addition to neurogenic bladder / sphincter dysfunction…this is very hard to manage …I now have an indwelling catheter after struggling with Isc and then a stoma that doesn’t work properly …seems the bladder spasms are very severe …Botox 6 moths ago really helped…it’s now worn off…and am awaiting another treatment under ga. I had an odd reaction post Botox and was very unwell…it now comes to light I suffered Autonomic dysrefkexia…and have done to varying degrees since at least 2008more so after bladder procedures ( cystoscopy, …an overfill bladder , during kidney x rays with. Intrastate dye…)
my neurologyst who has been great is now doing an urgent review …due to this because a full or incomplete sci can put you at risk of AD …and as I understand it some people with MS can also have it.
It it is an autonomic nervous system malfunction …where the body responds to a noxious stimuli and this causes very high blood pressure , flushing , headache and other symptoms which if do not subside are a medical emergency …bowel impaction, uti, blocked catheter and a overfull bladder for a long period of time can all be triggers …so just wanted people to be aware of this …just in case anyone has these symptoms …speak with your gp about it and if it is suspected then you will need to carry an alert card and possibly medication to use if blood pressure does not subside after bladder and or bowel issues are resolved …I don’t want to alarm anyone here but I think it’s important to share this an highlight it…
i had had a letter today from my neuro dr to say he’s reviewed my notes from previous hospital…however it’s unclear from the letter if that means he has done the review…he makes reference to past neuro eye probs and bladder issues and he’s happy these are being monitored and managed…but no reference to past neuro symptoms or tests…he has not put any conclusions in his letter …nor put forward his opinions although he has suspected a spinal issue of some kind since I first saw him back in 2013 …am a bit baffled …am awaiting neuro rehab which he is part of the team… that at recent review there …they warned I could suffer a setback during rehab …they have offered me two weeks and if I did well another two weeks …but I am now concerned about the possibility of a set back…seeing as ive worked so hard over the last 4 yrs …my eyes all sorted …driving again …feeling better in myself , keeping as active as I can re upper body and core strength…I have asked for feedback from them …regarding a possible set back and pressure support would be in place …I am fiercely independent and want to stay that way…lol …
Sorry it’s a long post …any feed back / thoughts would be appreciated …am pretty sure I don’t have MS but it seems the hope of a diagnosis of any kind seems unlikely …and I will just have to get on with it.as I have done for the last 20 odd years …