Hi Chrissie thank you so much for you lovely words, advice and encouragement.
i have received the diagnosis a while ago and the neurologist who gave it referred me to another neurologist that specialises in MS. He wants me to have another MRI, lumber puncture and Neurofillament test to determine state of the condition. This is why I want to go privately to speed things up and get any available treatment rather than wait 3-6 months to have these procedures done on the NHS.
many thanks again
Thank you Steve. Excuse my ignorance but what is access to work and what does it provide please?
kind regards
giova
Hi Novie
Welcome and thank you very much. I’ve only been registered on here for 2 weeks and have already got so much advice and support, safety in numbers.
I travel all around by car and train in my work and am not based in an office. My company head office is 120 miles away.
Hope you become a regular.
All the very best
Giova
Hi Juls
Just by taking the time to respond you have been very useful and helpful, thank you. Like you I have been diagnosed at 56 and similarly have probably lived with it for years.
My work is not office based, Im a sales manager so travel by car, train and walk to see clients.
Regretably I don’t have critical illness cover, shame it can’t be purchased retrospectively :). However I do have income protection insurance which in theory would cover about 35% of my salary.
I have had the diagnosis earlier this year, these next set of scan and LP is to determine state of condition so any treatment can be decided on.
Many thanks
Giova
Hello.
If you google it it will give you the details.
They give you a number of options to keep you in work.
Steve
Hi Tony
Your kind words of support are of great help, thank you. You have also calmed my worries down regarding getting my boys through uni.
Unfortunately there is no union presence in my company and regrettably as a person with left leaning views I am not in a union. The line of work I am in, mobile sales manager, has no real union background that I am aware of.
In the short time that I have been a member here I have gleaned so much strength.
All the very best
Giova
Hi Cat
Very inspirational words, thank you so much!
Counselling is a good call as I have had some in relation to some previous depression and anxiety issues and am currently on my last session of CBT therapy.
I will do all I can to take on board your suggestions. Have been continuously ringing and emailing both the private and NHS secretaries of my neurologist, much to their frustration.
All the very best
Giova
Hello Giova , I’m sorry I’m late replying I’ve read all of your messages and I’m full of admiration for your plucky personality. It’s awful being hit with life changing disability but it’s about changing our outlook. I’ve been in a wheelchair for the last 4 years and still without a definite diagnosis I was told this was a stress related disorder but I’m not getting better just slowly getting worse. I’m 51 and have 7 children 3 are still at home and need me so I understand the stress you feel . The advise everyone has given is good. The friends on here have kept me going. Michelle and Frazer xx
hi giova
just a couple of things that have helped me.
when going for an MRI ask for one of those wedge things to put under your knees.
i had my first MRIs at the main neuro hospital in manchester.
but then had one in a local clinic and a lovely nurse popped a wedge beneath my knees.
much easier to keep still.
also see the bowel and bladder clinic because the most soul destroying symptom is incontinence and these people really do help.
carole x