Hi all
So since last week I’ve been getting random tingling it started in my thumb , then hand now hand and arm , it’s intermittent so ms nurse thinks it’s from previous inflammation but I’m not convinced as I’ve never had arm feel like this before, it doesn’t last long maybe a minute but keeps happening every half hour or so , just asking if anyone else has this ? Is it just an ms thing or should I be pushing ms nurse a bit harder and say something?
Thanks
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Hello there
The closest I had to that was donkeys years ago when I used to keep having to check my back pockets of my jeans because it would feel like my phone was vibrating. Not all the time, but often enough for it to be annoying but not so often that I’d remember that it wouldn’t be my phone.
I think the medical professionals can be quite blasé about tingling sometimes because it sounds so trivial even though it can really get inside your head. Having said that, it’s unlikely that anything would show up on an MRI so other than patting you on the head sympathetically there’s not a huge amount they can do.
Do you keep a note in a diary of symptoms as you experience them? I used to find it useful firstly so I could go through them in my annual appointment with the neuro, but secondly so that they could see if there was any pattern emerging that might suggest a new part of the brain or spine was being damaged. And it made me feel like I was doing something rather than just passively letting things happen.
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Cheers for replying
I’ve emailed ms team again this morning so it’s on my notes , seems to have spread upto shoulder now when it happens , think I have mri in a week or so anyway so see what they say
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I had something similar in the past when I got stressed or too hot. I think that I would worry more if it wasn’t intermittent. Xx
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Hi
Yes hopefully your right about the intermittent being less of a worry, spread up to shoulder now and thumb has lost some sensation
MRI next week anyway and neuro has agreed to include spine 
it’s nothing new as this will be my first MRI since diagnosis 6 months ago
Thanks for your input
I would see this as a step forward. They have taken it seriously.
I had the same as yours, when both my hands went numb in my second relapse. Mine was not intermittent though. It started permanent, and stayed like that for 9 months. I basically woke up with nump hands, and they stayed numb for 9 months. Eventually because of this I received my diagnosis. Please keep us updated, but remember that my case is different to yours.
Yes will do
MRI was a bit of a shambles , they had no information of neuro asking for neck and spine to be added to the mri so were unable to do all at same time , I’ve emailed ms team trying to find out what we can do next as symptoms still with me
Grrr. Very frustrating I bet, hopefully you’ll get it soon