Sorry if this is a long post but wandered if anyone has experienced anything similar? I’ve been diagnosed with fibro but things dont seem to ‘fit’ It all started about 3 years ago with mighty bad back pain and exhaustion like I’ve never felt before in my life up until that point. Since then I’m incredibly weak in my left side in particular and also completely numb in left side. I have allot of mobility problems to. But over the last 3 years my cognitive skills have declined allot. My memory is awful, and I will totally forget how to do day to day tasks. I’ll go to make my kids lunch and just wander round kitchen aimlessly. It’s like I know what I want to do but I have zero idea how to actually complete the task. I also have trouble swallowing my food/medication. I often start choking like my body has forgotten how to swallow. My sight has also gotten really bad, and declined rapidly. I’ve gone blind in my right eye and my left is blurry. Gp sent me straight to eye specialist who said my eye health was great. They contacted neurology who agreed I needed emergency MRI. Had MRI last Friday that lasted 15mins. But since Monday I can’t finish my sentences and stutter and stammer on every single word, because of this I got rushed to hospital. They looked up MRI results from Friday and told me there was no sign of any tumors which is what the MRI was looking for. Basically said they dont know what’s wrong and sent me on my way with a telephone appointment with neurologist at end of june. My questions are has anyone experienced similar? And did a 15min MRI pick up any signs of ms or does it take a longer in depth one? If anyone has read to the end of this thank u loads.
I wanted to say I had read this as I see no comments. I am awaiting diagnosis but have a big family history of MS so I’m familiar with the illness.
It certainly sounds like it could be but they are not considering it for some reason (maybe known to them?) so I would ask the question out right.
when MS affects vision, I believe an eye test that scans the back of the optic nerve can show warning signs of MS but then, that might be very similar in the case of Fibo. I know they can be mixed up.
Brain fog occurs in both so that doesn’t help you either 
I have zero medical background but in my family experience the early mobility warnings related to dragging a foot or clumsiness to the point of constantly tripping or falling over. But even when my dad was diagnosed and had it a few years, he was still walking miles each day as did my grandad.
With your eye being healthy but you can’t see out of it - would suggest neurological but not MS with certainty as I would have though the eye specialist would have investigated the optic nerve.
I feel for you, the worst part of any illness is the not knowing what you have, or the waiting.
I wouldn’t say MS 100% but Maybe it’s not fibo either.
I really hope you find out soon, PM me if you want to talk. I have young kids too and this ain’t easy. Xx
Hi, I’m just new on here and wanted to post a wee bit about my symptoms and opinion of my neurologist who I just saw yesterday for the first time ,so here it goes! I was looking for options feedback from those who have ms or could help me. I am normally an anxious mess, but probably more so this now!! Around six years ago I started getting Numbness in my right thigh ,this has usually only lasted two days at most and has come and gone since then around 3/4 times a year. This was the only symptom I had right up until lockdown when the numbness in my thigh returned and was later accompanied by burning in both legs followed by done pins and needles in my hands. The numbness moved after a few weeks to my other leg and my feet. Only just recently have both gone away ,albeit burning very slight here and there. No mobility issues, or fatigue ,vision issues etc . It might worth emphasizing that my anxiety kicked of big time before these symptoms set in at Lockdown due to covid-19 fear. I went to a neurologist yesterday and he gathered history and did full neurological exam and stated that everything was normal and he finds it very unlikely that I would have MS. He said I could have MRI but in his opinion and years of experience my symptoms are anxiety related and or post viral. I wondered should I still have MRI ? I went private for this appointment and would think if he had any doubt he would have said go for MRI.hes a very experienced neurologist and was quite frank when he said my symptoms just don’t seem ms in the absence of neurological deficits in addition to the symptoms which came on during a heightened state of anxiety. He said my nervous system is in a state of fight or flight and this causes ms type symptoms. This makes sense as when I feel less anxious the symptoms are not as bad. He attribute the intermittent numbness in my thigh to a nerve issue ,which he believes is a separate issue. Just wondered what people’s thoughts were ? Thank you so much 
Hello Lou
I’d trust the neurologist. A good neurological exam (blimey you were lucky to find someone prepared to actually see you face to face in these Covid days) will show very clear signs if someone ‘might’ have MS. It’s not a 100% reliable test, but I think the neuro would advise an MRI if he really thought it was needed.
Why not start keeping a health diary? Note what has happened in the past, and again this year. Keep track of any future exacerbations of what seems like nerve activity. You can always get a referral to an NHS neurologist later this year or next.
Best of luck.
Sue
Dear Sue, thank you for your response it’s much appreciated. Yes,I think I will do that and to be honest probably should have before now. His opinion makes sense as anxiety can bring on an array of horrible symptoms. I think my normal neuro exam coupled with no fatigue,vision issues or mobility was what really set his mind that it couldn’t be MS. However ,this said I think a diary be good as I know everyone experiences ms differently . Thanks x