Any advice


I am new to this forum and would be grateful for any advice possible. A few weeks ago I saw a neuroligist as I had developed L’Hermittes sign. Previously I had been suffer from Numbness in the left hand side of my body and shortness of breath so much so I thought I ws taking a heart attack or a stroke. The Neuroligist was very up front and honest saying he believed I have MS (as he is also the Neuroligist for two of members of my immediate family) and has booked me in for an MRI. When I asked what would happen if the MRI came back clear he said he would be amazed. I am holding on to the hope that it may be a trapped nerve

Yesterday I recieved a phone call from our local MS nurse who wants to book me into the clinic to discuss medication with a view to starting in January. Today I have recieved a date of the 25/11 for my MRI.

I am slightly concered at the speed everything is going. Although my symptoms have subsided (apart from the L’Hermittes) I feel reasonably well. I really feel there is a good possibility I could have a trapped nerve and would hate to go on medication for something I dont have. I discussed this with the nurse and she thinks the Neuro is going mainly on my family history and that an MRI is a useful tool but not a deciding factor when diagonising MS.

I guess I am worried about taking meds if I dont have leisons on the MRI and not taking meds and becoming worse and developing leisons, I keep thinking back to various aches and pains I have had over the years and I cant help wonder if it was MS all along or am I over reacting.

Any advice would be greatly appreciated.

Also how long will I have to feel like a mobile phone, although its not sore this buzzing is very annoying

They cannot precribe DMDs unless you fit the McDonald criteria and definitely have RRMS.

After my initial steroids it was decided I likely have PPMS, so I’m just telling you what I know, they would not give me DMDs as DMDs are only licenced for RRMS - so now, it’s a waiting game.

Don’t panic, it might just be that your local authority is on the ball. I wasn’t given an MS nurse until after I’d had MRIs etc. and a definite MS diagnosis.

Good luck

Sonia x

Hi Sonia

Thanks for your reply. Really do hope they are being over cautious Have my mri in 2 weeks so I hope to have a definite answer.