Hi… Does anyone have any advice for me? I’m feeling confused and frustrated. I had an MRI last September which found ‘innumerable’ white matter lesions. This was due to terrible pulsatile tinnitus ( no cause found- just told to live with it). After lots of other odd things, I was referred to neuro to look at mri. He did some basic tests and found I had lessened sensation in my lower back, abnormal plantar reflex and some ‘asymmetry’?! Over the past year, I’ve had constant pins and needles, feelings of icy cold and burning patches on my legs, very bad neck and pain in shoulders, lower back and hips. I’m taking 200 mg pregabalin to help with this ( which it does most of the time).
A month nth ago my neuro sent me for evoked potentisls and lp. Whilst on holiday last week, my right leg was so bad I had to use a stick to get about as it kept giving way. I spoke to neuro secretary this morning and she said ’ good news… Lp is clear… We’ll see you in January’.
Whilst I don’t ’ want’ Ms, I am now wondering what the hell is wrong with me! My mum has Ms, so Im not totally ignorant about it, but if my lp was clear does that mean I don’t have it? I am so sick of not knowing and feel so down not knowing what is wrong. I was not told of my evoked potentials results, but someone said these ‘don’t matter’ in diagnosis anyway?!