Hello,
The trial of Anti-LIINGO-1, a drug that might have helped people with SPMS has been canned. It failed to meet its designated end points. Will there be a drug that can slow down the progress of MS?
My MS progress is very slow, I was diagnosed in 1994 long before effective drugs to slow down progress were available. Is there nothing for us? Will people like me be forced to suffer a steady progression until we fall off our perches?
Patrick
cheer up patrick!
i’m rrrms but feel like i’m in a steady decline.
then again this humid weather doesn’t help.
carole x
It could be a long wait if you are looking for a fully trialled and approved drug, but ldn is easily available and nothing to lose by trying it out to see if it helps.
Only anecdotal evidence and doesn’t work for everyone, but worth a shot in my view.
Hello Whammel,
I tried LDN about 10 years ago but was distinctly unimpressed. Possibly because I was then looking for something that would make me feel better rather than something that would stop me getting worse so quickly.
At the moment I am on the MS-SMART trial. Don’t think I am on a placebo but progress of my MS is very slow so not able to say if it is having any effect.
It is things like FES and ISC that seem to improve my quality of life and allow me to do things that I want to do and enjoy doing. The $64 million question is will the MS progress the the extent that I am no longer able to do those things? That is what really frightens me.
Getting back to your first statement then I’m sure the treatment is already available but being used for something else so need to repurpose So someone needs to find that drug AND the process of trialling has to be made shorter. Not just for MS but for all the LTC diseases. In many cases this is possible but the willingness to do something new and revolutionary is absent
Patrick