annual review............ha!

All all.

Got my annual review Monday coming. Appointment time 2pm…going by recent experiences that means I should get in to see doc around 4 ish!

Sis going with me for company and as a decent pair o` ears compared to mine.

The neuro was new last year…she seemed attentive, eager and helpful…huh! how was I fooled yet again… she said shed organise a scan, for abdo pain... didnt.....waited ages then gp did it, she said shed do summat else…never did…did it meself!

The pregabalin, I asked her to try me on for painful heels hasn`t touched them…thinking about asking her for gabapentin…is it beneficial for extremely sensitive heel pain?

Nowt else I reckon I want to ask her about…shes neuro no. 16, in as many years yknow!

pollx

Hi Poll,

I am about see my third neuro next week. Just hope he doesnt suggest something else to add to my list of diagnosis’.

It is annoying when they say that they are going to do something and dont bother. It seems to me they put you at the bottom of the pile and forget about you.

I hope you get more luck… I tried gabapentin and the only gain I got was an extra stone in weight over 2 months! Thankfully it fell of after I stopped the drug.

Moyna xxxx

Hello Poll

Just want to wish you well with your review Monday, hope it goes well.

Blimey!! neuro number16, you’ve been at it a while Poll.

Noreen xx

just wished you well twice…got mush in my head today lol

An annual review - wow. I don’t even get that. Treat me right has a long way to go!

hi poll

good luck. hope no 16 does the job for you.

gabapentin was kind to my neuropathic pain but recently has caused my stomach to bloat and gave me an upset tum.

hope it works for you.

carole x

Good Luck and hope you don,t get another frustrating wait.

I am on high doses of Gabapentin and would like to try Pregabalin, I think it must be more expensive as GP refused me.

We are all different so I hope if you get the Gabapentin it works for you, it does help me lots just I wonder if the pregab might do better.

Best wishes, Ell

Hi Poll

wishing you well for monday. Hope you get the help you need.

I’m so lucky with my ms team neuro is so lovely, and nurse is always a phone call away.

I had my first annual review last thursday as a result I’m increasing dosage of meds and going to start rebif.

I know how lucky I am having this support, and wish that everyone could have the same.

Freckles xxx

Cheers all, will report back Tuesday.

pollx

Hi Poll,

Can’t wait to know how you got on!!

My appointment for the Neuro was brought forward due to hubby passg away and then that road accident!!

So saw him in April when I was put on Amitrip and Tramadol slow releasing. I then got a reminder through the post reminding me of my origingal appointment in July! I mean is there any point in going again so soon. Only thing that’s changed is the drugs are helping with the pain!!

These fingers just don’t want to type today! Feels like a trapped nerve! I can waggle them ok, but telling the fingers which keys to press just ain’t happening!

You take it steady and no bedroom antic’s. Not good for you all this girlish giggling

C x

Hi all.

Well was I surprised to find the neuro wasnt running her ususal 2 hours late!. My appt was for 2pm…on time! Now dont all faint at that shock horror of an event!

The consultation went ok, I guess. I told her the pregabalin did zilch for my chronic heel pain, but had shut my mysterious abdo pain right up! Told her I`d had 2 scans and nothing was found, so the uro didnt want to do any further tests.

She asked what the max dosage I was on was and I said 225mg…she asked Twice a day? Well no, and that I had reduced it to 150mg as that as keeping the tum pain way.

She told me to aim for 400mg a day…ie 200mg am and 200mg pm. She gave me a script for 25mg, so I can add them in 2 weekly increments to get to 400mg a day …ok will do.

She suddely decided to lift my legs a bit and said, There is no spasticity. I told her Oh yes there is! They stiffen and judder when in bed and they also do the Elvis impression most days!

I also told her about my deaf right ear, getting worse and how it affects me in noisy places. She said I should be seen by ENT. I told her I`d been that route 5 years ago, to no avail. She said it wouldnt hurt to go back. I asked about a referral. She said she would tell my GP to do the referral…why couldnt she? ???

So that`s it guys…follow up appt in 8 months…weird timing but again ???

luv Pollx

Hi Poll!

Glad you were not kept waiting too long and the appointment went ok.

I hope the increased dose helps the heel pain. You have suffered with this for far too long.

I can’t see what ENT will do this time though - that they didn’t do last time you went!!

Take care my love,

Teresa.x

Hi Poll

Glad you wern’t kept waiting, there’s nothing more boring!

Hope everything works the way you need it to.

(((((HUGS)))))

Freckles xxx

Well hope the increse helps heel pain.

As for ears…having same problem.

Everyone wants new referal from GP as I think it means GP budget is used. Not positive but believe that is so.

I am off to see GP this afternoon and need 3 different referals but only allowed to ask for 1 at an appointment as gp will deal with 1 issue at a time…no energy to argue and point out the extra stress in my getting to surgery 3 times and to say nothing of the petrol cost…live in the country.

Best wishes

Ell