Hi everyone
Instead of enjoying a very much celebrated day in Ireland- St.Patrick’s Day. I have unfortunately been dealing with increasing numbness in my right arm and leg only. It all started last Thursday when I woke up with a painful knee (this is pretty normal for this knee) I done my usual stretching to keep it moving. Then the numbness started however it’s more like your leg asleep and you have lay on your arm causing it to feel dead. My grip in my right hand especially holding a cup has been noticeably weaker.
This is a new symptom for me definitely. Anyone else had this experience before? I am only diagnosed a year ago so I am still learning about MS. B x
Hiya btrainer93,
I’m sorry you’re experiencing this new symptom. Have you spoken with your ms team regarding these symptoms?
I’ve been experiencing problems with my right knee, tightness in the joint and spasms in the leg and hamstring. At present I’m awaiting to see the neuro physio, it’s been checked out by a doctor he’s saying spasticity. I would suggest speaking with your ms team as it’s a new symptom. x
1 Like
Sounds like it could be a new lesion? Get in contact with your ms nurse and they will put you in touch with the relapse team. In a way my last relapse was kinda of good in a way because it fast tracked everything… took 4 months to get on treatment, can’t imagine how long it would have been without the relapse!
Hope you’re ok, if it’s any reassurance I had the same thing and it improved after a month and I get the numbness every now and then but not all the time. So hopefully it will improve for you soon.
1 Like
Thank you for your supportive reply. It does feel like a whole new symptom for my MS. I haven’t had so many changes as the past few months have. Fingers crossed my scheduled MRI will answer all my issues.
I do hope these symptoms clear up quickly.
Take care, B x
1 Like
I don’t really have a lot of contact with MS team. It’s very difficult to contact them. If one has left, another is off sick. It seems to be I have to contact my GP then they forward my concern to my MS neurologist. Thank you for your reply and suggestion.
Bronagh x
1 Like
With my ms team you ring the ms nurse and leave a message and they should get back to you within 5 working days. It’s changed up now and they have an email as well. Do you have any service like this?
1 Like
Well, I have to say that the things you describe sound like my own experience, I’m afraid. Time for you to talk to your MS nurse, I think, I you haven’t already.
In my own early days, the numbness was similar but the loss of grip was in the left hand for me - I have so far been spared the calamity of weakness in my Guinness arm…
I hope that this is just a blip for you and that you are on the mend soon.
1 Like
Unfortunately not. Thankfully a MS nurse phoned today from different post code area/trust. The only reason they phoned was because I phoned an appointments secretary where my usual appointments are at and I begged them to pass onto the MS team, I think I was having a relapse. Disgrace really.
Sounds like you know too well what to expect from MS. I finally got speaking to someone today but I do hope they phone back with a response from neurology. As promised 
best wishes and take care
B x
2 Likes
That is a disgrace. It is very dire the NHS now.
I do know that there’s a relapse clinic that runs at the hospital. When I had my relapse I spoke with my now consultant on the phone. But in order to get that telephone appointment I had to go through the ms nurse. I then got an urgent MRI scan within a few weeks and an appointment with the consultant a few weeks after that. So hopefully they will refer you to such a clinic and you will get an MRI soon 
. If it’s ever really bad, and you suddenly can’t walk or see etc you just need to go to A&E and they will likely give you steroids.
My last relapse came about a month after the lumbar puncture confirmed ms and this fast tracked me seeing a consultant, and then starting treatment. So if you aren’t on treatment yet you should hopefully be on the right track to sorting it out quicker
1 Like
Isn’t it just? Yes I am on treatment very quickly after my diagnosis last year. Two previous MRI scans showed activity. This time round at my review appointment with MS neurologist, she explained to me i was showing signs of progression . So currently I am waiting on an urgent MRI to see if I need a stronger DMT. X
…or can’t pee. That’s one that’s a medical emergency and an unarguable reason to demand urgent attention. My GP said that to me many years ago.
1 Like
you get on the right path quick!
Take care and try to relax, for me that’s the hardest thing to do! But stress definitely makes it all worse
An update- on Thursday late afternoon, I was contacted directly by neurologist covering my usual MS neurologist. Advised me to see them on Friday morning on the neurology clinic. Urgent bloods taken and urine dipped. Urine was totally fine but traces of nitrates and blood were present. Due to this I couldn’t begin steroids treatment until my urine came back completely normal. I will be getting a follow up phone call tomorrow to see how I feel.
3 Likes
you can soon start the steroids to aid the recovery x
1 Like
Infections bring up ms symptoms but luckily it’s something that can be sorted pretty quickly! I ended up in hospital twice after having my second because it seemed like I was having a stroke. I had mastitis and my temperature was really high and it was bringing up all the nasty ms symptoms. This was before my diagnosis so I was confused what was happening, along with the doctors. In hindsight it makes sense now. But as soon as I started taking the antibiotics/got my temp down all the symptoms melted away