Hi everyone. How`s everyone doing? Hope you are as well as poss.
I got 2 appointments in the post for my follow ups, after the farcical one last week.
They are for April 13th…yes, it
s a Friday....someones having a laff at my expense! And one for October.
I suppose April is acceptable, after that numpty neuro asked me to give her 3 months to see what she can do about my multi-diagnoses!
I have a new name for the local neuro dept…the Joke Shop!!! Seems about right with their tossing me from MS to HSP to MS again.
For those who haven
t followed my pantomine of a journey, heres a short run-down.
1999 - PPMS suspected, .due to examination findings, but…all tests normal…3 MRIs/LP/EMG/VEP/bloods. using stick, walker and wheelie part time
2003 - 95% dx PPMS
2004 - using wheelie full time
2008 - MRI…3
blobs in neck region…BUT MISSED!
2010 - HSP
2011 - different neuro said PPMS - was told that the 2008 MRI looked like MS and the missed
blobs were discussed
2012 - different neuro said HSP
I have seen 13 different neuros in as many years.
Innit chuffing marvelous, eh? You couldn`t make it up!!