Hi Poll Hope you’re as well as can be expected. It would be so good to put this saga to bed wouldn’t it? It makes you lose faith in the medical profession which is dangerous as we need to feel that we can rely on them. How is hubby getting on with giving up smoking? Keep on keeping on and don’t give up! Take care, Teresa xx
It begs belief just looking at your long list of appointments/diagnosis/non diagnosis/more appointments etc,etc,etc. The medics really should get their acts togather. I mean, I am not delirious that I have got MS, but I am grateful that at least I know what I have got because then I know what I am up against - ‘forewarned is forearmed’ and all that. I just hope that you very soon get the correct information and then you can move on from that point.
I know what you mean about having a definite dx. No, it is horrible having MS, but I`d rather it be MS than HSP, as that carries a 50% chance that my kids and grandkids could develop it. Bummer!
Hi Mel, thanks for your replies. Yes, it often gets mis dx`d as MS, as the mobilty, bladder and bowel are affected.
As far as I am aware, certain genes mutate and cause these problems.
As well as being passed down, a person can suddenly have a mutation happen. If I do have it, it is more likely that mine have decided to misbehave…big time! Not nice!