I am looking for some advice if that’s ok? For the past three years I have had extreme back ache. When it’s bad it’s the worst pain i have ever felt. I had an mri on my lower back and it came back clear. I was told we don’t know what’s causing it so basically you will just have to put up with it. Last year I started to get pins and needles in my hands and feet and then it started to go up my arms. A few months later I started getting shooting pains and numbness. The dr told me i was probably low on b12 so started me on b12 injections. Now 7 months later my numbness and shooting pains are getting more intense and has moved to my face. I have wet myself a few times and constantly feel exhausted. I have been to the doctors a few times and feel like they just fobb me off. One even said I don’t know what you want me to do. This week the pains have been really bad and yesterday I started to feel the shooting pains in my genitals which really has me worried. I have made another appointment to see the doctor next week but I feel they will just send me away again saying its probably another vitamin deficiency. I am just after a bit of advice to ask if anyone thinks these symptoms could be ms? Thank you
When your doctor said you were probably low on B12, did s/he test your B12 levels before giving you the injections?
Assuming s/he did, is it not likely that you are again low in B12? The symptoms do sound like a lot of what you’ve said. This is the NHS page on B12 deficiency: https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/symptoms/
There are many different diagnoses which share symptoms with MS. B12 deficiency is one of them. If you find yourself at the doctors again, perhaps you could ask for two things, one is comprehensive blood testing, including Vitamins B12 and D. The other is a referral to a neurologist.
It’s pretty impossible for any of us on this forum to say ‘yes, MS is possible’, or ‘no, it doesn’t sound like it’. Since there are so many other things it could be, the only way of checking whether MS is responsible is by seeing a neurologist, having a physical examination and maybe other tests.
I hope you find an answer, it sounds really quite miserable to have these symptoms and no answers.