When I was diagnosed it was a complete shock to me, I had no idea that the tingly feet I’d had in the previous months was anything to worry about, my vision went blurd when I was in work one day so I went to the doctor who told me to go to hospital. I went, got kept in for 2 weeks (had an MRI) and came out with the diagnosis of MS! I knew nothing about MS and the doctor didn’t give me any other info, apart from go away and get on with your life. 3 weeks later I was back in with another relapse and carried on like that for the next 6 months (in a complete fog).
I didn’t have professional help at any point and sometimes wish I had. I did go to my GP, burst into tears and got put on anti-d’s. I struggled to deal with it and my family struggled to deal with it, it took me a hell of a lot of courage to stand up to them and say ‘hey I’ve got this thing, let me deal with it however I can…it’s not yours to fix!’ But I had to do it as I couldn’t cope with all of the fuss being made. I really feel if I/we had been referred to someone to talk to, it would have been alot easier and less traumatic. I felt that I needed someone to talk to to get my head straight and the only people I had also needed to get their head straight too, if I’d got professional help, it might have made the ‘coming to terms with it’ process a lot easier.
Hope that make sense and helps a bit.