advice welcome

[Inactive_User]

Hi All i was hoping to get some much needed advice if i could and will start by telling you all my story to make it easier though it may be long. In November 2012 my then 39 year old husband had an event (some doctors say TIA but at the time they said no) and while he does have a massive family history of cardiac disease he has been very active in trying to alliviate his risk by staying fit (he has a resting heart rate of 40-45), eating relativley well, and getting regular checkups. he has always had a slightly high BP (140/90) but the GP has always said that as he had no symptoms of this then it wasn’t worth treating. They didn’t feel it necessary to admit him to the hospital at the time and all of the tests afterwards came back negative… with the exception of his MRI which showed unidentified bright spots (i am still waiting for a copy of his medical record so as i know the exact terminology used). anyway the neuro said it was probably nothing and ordered a repeat in 6 months to ensure they were stable so we went about our lives. on repeat scan he had new spots and they were apparently brighter than before and the neurologist said they were consistant with someone who has MS but as he had no symptoms at the time they could not diagnose this. anyway about 6 weeks later symptoms came on with a passon, he was swimming one day when he got chest pain which got him out of the pool, he drove home (7Km) and had weakness in his left arm found it hard to change gears so i took him to ED he was admitted for 3 days and tested for about 10 different things started on medication to lower his cholesterol and sent home. since then he has constant pain in his left leg from his butt to his ankle, dizzyness (was readmitted last month for vertigo where he couldnt even feed himself, sit upright etc) memoryloss (particularly short term), balance and co-ordinatin issues (walks with a stick usually and the last couple of days has needed the wheelchair just to get to work as he keeps kicking his stick out fromunderneath himself and falling down), severe fatigue (can only work 5 hours/day and naps often in the afternoon), constipation, word finding issues, one day he lost his left arm for the whole day but it seemed to reappear the next day. Amyway now the neurologist has advised that the leisions are more likley vascular due to their placement. I did ask for a referral to a MS specilist neurologist in Sydney who agrees with our previous neurologist and i am now so confused i dont know where to turn. He did have a negative LP during his admission last month but they are the only MS related tests he has had. David himself is so over being made to feel like he is a hypocondirac he has decided to stick his head in the sand but i dont know where to turn next, The regular neuro team actually told me i should stop researching because i was making him sicker. hoping someone can help and thanking you for letting me get it out- sharon