Advice Please PLease Please

New diagnosis and before diagnosis
1

thankyou for anyone that is reading this and i would love advice, any advice would so so appricited

i’m 36 year old female, i’ve had several years of being diagnosed with different autoimmune conditions ( last 5 years)

Diagnosed

Ulcerative colitis

Nasal polyps

Lichen Sclerosus

Keratoconus

other condition i’ve not been to the doctor but had is

Stop breathing in the night (not every night just every now and then, wake myself up gasping)

Stress incontinence (last couple of years, get worst and slightly better )

Pain and numbness in hands and feet ( sharp pain in feet , get worst some time , like sharp needle been placed)

for the last few year i have like a allergy type reaction like systoms - this has come alot more often lately and can be once every 2 weeks

Flare up – last 24 hours

Itchy nose – very very runny nose

Blur vision, alot more than normal

Watery itchy eyes

Extra saliva

Cough and breathing problems

Muscle pain ache throughout body

Sharp pain in feet and hands

Flu like systems

this last around 24 hours and then really really tired for days after and real problem with sight and concentration after

These system are really effecting my life now and can’t keep on this way

on reserch it looked like MS type system, what does other people think?

i’m seeing doctor on thursday , should i mention MS?

i’m seeing Opticians on friday as well

i am so sick and tired as you can imagine going to the doc and getting diagnosed with something else as you can imagine, really can’t carry on, let me know what anyone thinks?

xxxxx

2

Hello and welcome to the site

The first thing I would say is that, no, you should not mention MS. On the whole, doctors do not like self-diagnosing patients and tend to dismiss people who tell them they think they have MS as actually having anxiety.

You are doing the right thing by seeing your GP and an optician. I have to say that a lot of your symptoms are not normally associated with MS though so I would think there would have to be more than one thing going on or be something other than MS.

Your GP may not have time to deal with everything, so I recommend you pick the main problems to discuss. Sleep apnoea (stopping breathing) and the coughing / breathing difficulties may be related and I know that sleep apnoea can cause a lot of other symptoms that happen during the day, so if I were you, I might focus on them, but your “allergy type reactions” is a nice summary of a lot of things so maybe that is the route to take. And perhaps it’s actually what’s going on.

I hope the appointment goes well.

Karen x

3

thakyou, let you know how i get on, its just frustrating not know what wrong with you, but knowing the is and you start going on to web too look :frowning:

my Ulcerative colitis & Lichen Sclerosus is fine at the moment

waiting for op on nasual polyps, maybe that effect my sight and breathing at night

numbness in my hands and sore feet is a pain, espically when i work for myself and it hard some days using the mouse on the computer. but being at home does help i can have a nap for half a hour in the day. :slight_smile:

thankyou again rizzo

4

thakyou, let you know how i get on, its just frustrating not know what wrong with you, but knowing the is and you start going on to web too look :frowning:

my Ulcerative colitis & Lichen Sclerosus is fine at the moment

waiting for op on nasual polyps, maybe that effect my sight and breathing at night

numbness in my hands and sore feet is a pain, espically when i work for myself and it hard some days using the mouse on the computer. but being at home does help i can have a nap for half a hour in the day. :slight_smile:

thankyou again rizzo