I haven’t posted on here in a while but once again I’m back feeling frustrated at the diagnoses process and wondered if anyone had any wisdom.
For some background: I have been experiencing muscle weakness, pain, fatigue, altered sensation, headaches and eye pain, light sensitivity, painful urination and pins and needles on and off since the start of 2014. I’ve had 3 MRIs on my brain, 2 of which showed lesions. I was left about 9 months ago with a semi diagnosis of functional problems (although no one has explained how my lesions are OK when a previous neurologist said they were not within the normal range). I have not had any other tests apart from the MRIs.
My issue is that I have been feeling pretty rough recently and I’m getting cramps and spasms in my right arm and leg. My hand constantly feels like it wants to be clenched and my muscles ache a lot. I’ve also spotted a pattern that even when I feel generally OK I get more achey and have a lot more weakness and spasms just after I’ve had a period.
I’ve got a GP appointment coming up and I really want them to let me see my neurologist again. Last time I went my GP insisted that my eye pain and light sensitivity was just tension headaches, and the time before they asked me if I wanted antidepressants. I’m really struggling to get them to take me seriously! I’m only 25 and I look quite a bit younger but that shouldn’t be a reason to belittle my experiences. I’ve even directly asked for more tests so that we can at least officially rule out MS but keep being told that I can’t have them.
Does anyone have any advice for being taken seriously?? I feel like the more times doctors insinuate that I’m being dramatic the more I start to wonder if I am- and I know my body and I know that something is not right!
Sorry to rant, I think I really needed to get that off my chest!