I am a 53 year old mum soon to be a grandma. I was diagnosed with ME and then fibromyalgia 11 years ago. I have been really unwell for the last 3 months or so, feeling depressed, complete and utter fatigue and terrible pain. My GP has given me prozac and referred me for talking therapy and my rhumatologist has referred me to the fibromyalgia pain clinic. I have been waiting for about 2 months now and there is still no sign of either appointment. When I started with the ME and fibro symptoms I had various tests, scans etc as my doctor was thinking possible MS but everything came back normal. The problem is that I feel worse than ever and can’t stand much more. I can’t sleep because of the pain, there is a gnawing ache in my leg and hip and my leg although it really hurts and aches doesn’t feel as though it belongs to me!!! I know this sounds mad! For the last 3 weeks I have been walking with my leg completely straight as when I bend it, it feels like someone has hit the back of my knee with an axe. My doctor sent me for x-rays which showed some osteo arthritis but she said the pain I describe doesn’t sound like arthritis pain. She has now referred me for physio.
I hate seeing my gp, she is lovely, but I feel that her heart must sink when I walk (or stagger) through her door. The problem is as soon as you are diagnosed with fibromyalgia everything is put down to it. I don’t want to sound like I’m a hypercondriac and ask for more test for ms after being tested 10 years ago, what do you think?
personally I don’t think it’s unreasonable to ask for more tests after 10 years! Things change quickly in medicie and maybe fresh tests will show up something new that can be treated more effectively - no harm in asking !! xxxjenxxx
When I was originally ill in 2002 I couldn’t walk without support as I was so dizzy I was constantly falling over. My then gp was very thorough and sent me for numerous tests and nothing was coming back conclusive. I had previously in 1992 had an over-active thyroid which I had partially removed and then became under-active. After a couple of years my thyroid re-grew and I had to to have radio-iodine to kill it again!! This then made me so under-active I couldn’t even pick up a spoon. The symptoms of an under-active thyroid are very similar to fibro/me and so when I became ill in 2002 I assumed it was my thyroid again. When the mri’s etc came back clear but I was still so ill I went to the library and searched until I found a book about ME which described my symptoms exactly so I told my gp that that was what I thought I had. She referred me to a specialist who said yes I had ME and also fibro. My symptoms over the last 6 months have gradually worsened and from being able to walk a fairly brisk 3 miles I struggle to walk round tesco. I can fall asleep sitting up in company! Embarassing as I snore! I sometimes get a “fizzing” feeling in my foot, not as strong as tingling. Do these symptoms sound anything like ME?
Hi D.if i were you i would ask for some more tests,dont be made to feel like a nuisance,i was made to feel like this before my diagnosis,but i kept insisting that i had something wrong,you know your own body,i knew there was something wrong with my brain,it was just convincing the drs.
i have just become a new gran for the 1st time,my daughter had a baby girl 21st jan,good luck with your soon to be grandchild.