Hi All, first off all thank you for reading this. I appreciate you must get a lot of ‘I’m worried I have MS’ posts that drive you crazy. I am going to the doctors in a weeks time to run my symptoms pat her and see what she thinks but as the experts yourselves I’d love your opinions, I understand that everyone is different but wondered if anyone had similar symptoms. I’ll go through my entire medical history (that I know of) to see if this helps. When I was 6 months old I had a heart murmer. At around 15 years old I fell off a roof and took a chip out of the none in my knee and had to have fluid removed. I am double jointed in my hands. For the last 5 years I have woke up some mornings (about once every 2-3 months) with an extremely stiff neck. All my pain started around 3 years ago. I used to sit at my computer and have to adjust my sitting position loads as my lower back was painful. A few month later I had a ‘heavy’ pressure type feeling in my lower left abdomen which I have had a variety of tests for to look at my kidneys and abdomen (ct scan, IVU, X-rays) but to this day this ‘pressure’ has not been diagnosed. An X-ray showed wearing of 2 of my lumbar discs (told this was presumably because I was overweight) About 6 months ago I experienced some chest cramp in my left side just under my rib cage which I was checked for a heart attack but was told it wasn’t and that I had a bad chest infection. Since then I often get short 1 second burst of cramp in my chest. Which I tend to just brush off now I’m not worried of heart problems. My main concerns are some other symptoms I’ve been having for around 2-3 month. For the first couple of months I noticed the occasional twitch in random places around my body (calfs, arms, neck, chest) these have become more frequent to the point I notice this happening once or twice a day. My knee (the one I broke) feels weak and if I am stood still for a length of time sometimes buckles forwards (I have never fallen because of this). I constantly move my toes and they jerk slightly every now and then (not daily yet), a couple of times when I have been falling asleep my whole body has jerked and woke me up with a sound like a have been winded(happens 2 times in the three months) I also always tap my feet or move my legs (like RLS) I still have some strength (I moved a sofa up 2 flights of stairs the other day) but for 4 days afterwards I could barely use my hands as hey felt like they were not doing what I told them to. My forearms have also felt rather tight since doing the sofa. Little fiddely things like typing at work I seem to miss the odd key when typing. I woke up this morning and my thump, index and middle fingers all had pins n needles (both hands)but the other fingers didn’t. My neck pain is always constant and my doc says she feels a huge knot in my shoulder and believes I may have a trapped nerve. When sitting on the floor I have burning sensation in my feet and then pins and needles. The back of my thigh has a tingling feeling down the back and also the occasional tingling down the front. My calfs also feel occasionally tight. Whenever I stand up all my joint click. I also get what seems to be described as brain fog where I just forget what I am doing or saying halfway through. I also believe I suffer from health anxiety which I am currently trying to get help for if I truly do. I know I can attribute all my symptoms to other conditions; Hand pain - being double jointed Leg pain - my broken knee Twitches and pins and needles - trapped nerve in neck and wearing of lumbar discs. But I would be most greatful to know if any of this sounds like MS symptoms to any of you.
I am not an expert and so can only speak from my own experience (I have RRMS). For me, MS relapses have tended to be very distinct and have followed a standard pattern - starting small and then building and extending and getting worse steadily over days, staying like that for weeks, and then resolving, either completely or partially. In other words, things don’t happen a couple of time a day, or now and again. Having said all that, things aren’t quite that simple, particularly once a person has had MS for a while and there is accumulating disability from previous relapses and also, maybe, some low-level disease activity from time to time so stuff is bubbling away quietly without actually triggering a full relapse with its tell-tale trajectory. But I think the well-defined trajectory of a RRMS relapse is pretty characteristic for many people; it is for me, certainly.
Alison
x
Hello and welcome to the site The only things on your list that I would not be able to explain from your known conditions and/or being normal are the twitches (which sound like fasciculations) and restless feet. These can occur as completely benign conditions, but can be a sign of a vitamin or mineral deficiency. I honestly think the chance of you having MS is very very low. I hope your GP can work it out (I suspect some blood tests will be on the cards). Karen x
Hi, well yeh, some of your problems seem to have reasons.
Like the knee problem…following an op it could become weak.
Moving furniture would cause your muscles to ache afterwards.
Neck pain…could that be due to lack of support from a good pillow?
it doesnt sound very MS like, but then what do I know?
After 14 yrs of VERY PPMS like problems, i`ve been told I defo do not have MS, but spinal cord injury…cause unknown.
Get ready for a battery of tests…and i hope they can tell you what`s what.
luv Pollx
Thanks for the replies guys…I constantly worry which is prob the health anxiety kicking in. Even sitting down now I’ve just had twitches in my left calf filled a few moments later by twitching in my right calf and haven’t done anything excercise wise to warrant it! I wouldn’t be surprised if I did have some sort of neck/back injury as I used to do a lot of stupid stunts as a kid which involved some pretty hefty knocks to the back. As you have mentioned about the only 2 symptoms that worry me that can’t be explained are the twitches ( which could of course be a vitimain deficiency as I haven’t eaten fruit/veg for about 20 years) and I also stumble over words/forget what i was saying, it’s not slurred speach but sometimes it’s as if too many words are trying to come out at once and I say half of them together. My docs app is next Tuesday and I’ve wrote a list of all symptoms and kept a diary this week of things I’ve noticed/felt. Again thanks for the replies everyone
Blimey…how do you not eat fruit or veg ??
Just never really liked it. I have started eating it but only very barely, although I am trying. Just recently noticed I have slight blurryness in my right eye. I wear glasses anyway but the other eye is fine. I don’t have loss of colour just slight blurryness.
No juicy strawberries or sweet cherries or soft ripe nectarines??