Can anyone help me please! I had a second visit with my neuro last week and he told me couldn’t tell me that I had MS or that I didn’t have MS. He said the activity in my brain is dramatic (not unlike my good self!) and could be something called ADEM but this as rare as winning euromillions in a person my age. (41) I still have tingling in my face, suffer from extreme tiredness and my right leg seems to drag when I’m tired. I had a course of intravenus steroids follwing a bad bout of double vision and not being able to stand up straight or hold my balance in the summer. I felt much better after these and the double vision went away.
He is going to give me another MRI, my 3rd, in 3 months time but said he can’t just keep giving me brain scans. I’m not sure where this leaves me and just feel really low at the moment. I have a wonderfully supportive husband but I feel like I’m driving him mad and becoming a bit obsessive about every ache pain and tingle. I’m sorry if I have gate crashed somewhere that I don’t belong but if anyone has heard of ADEM I would be grateful of some help. x