Following some issues with ‘numbness’ and weakness in left hand and some drooping on the left side of my face, I’ve found myself with a working diagnosis of Relapsing Remitting MS.
At the ‘peak’ of my symptoms I was also experiencing severe fatigue, forgetting common words and family members’ names (I just couldn’t place them), struggling to process and understand sentences, balance issues and instances of less sharp vision.
Following a short stay in A&E where I had a head and neck MRI, I left with some steroids, a potential MS diagnosis (four lesions on that MRI) and a neuro referral and a second full spine MRI.
Things moved quite quickly and I had my full spine MRI and finished my steroids. I spoke to the neuro specialist last week who gave me a working diagnosis of Relapsing Remitting MS and his belief my first relapse was around 12 years ago when my right side went numb/heavy and we left it was a case of Transverse Myelitis.
He’s referred me for a lumbar puncture and MRI with contrast to confirm and we’ll look at DMTs and refer to the MS Nursing Team from there.
I’ve been told to expect a 4-6 week wait for those tests. The laid back guy in me is cool with that but people around me are suggesting I try and push for them sooner - any thoughts on that would be great.
In the last week, my vision has gotten worse on occasions as if I’ve not put my contacts in but worse. Not sure if it’s linked.
So yeah, I just thought I’d say hello and jot down my journey so far!