I am new to this site and feel a bit of a fraud for being on here really.
I would really appreciate any advice or opinions on what is going on. I have been unwell for a very long time and to cut a long story short, I was referred last year by the Nurse Practitioner after I gave up all hope of getting help from my GP. I am due to get my first appointment some time this year for a local ME specialist unit. They have gone with ME instead of a Neruo appointment as a starting point.
About 3 years ago, I started to get symptoms of a neurological nature in addition to chronic fatigue which resulted from a glandular fever type illness when I was 17 years old (I am now 39). The symptoms were tingling and almost numbness in my legs after I walked for a short distance which I also experienced in my nose, chin, cheeks, tongue and upper chest. I phoned NHS direct and they said it was nothing to worry about. I left it 6 months before going to the GP as he has always said my symptoms were anxiety based so I knew he wouldn’t take me seriously. He asked me what I thought it was?!! I said that when you type these symptoms into Dr Google, horrible things come up and I didn’t want to go down that road. He described these altered sensations as parasthesia and when we talk about that he said, we normally think of MS but it is very unlikely to be that. He sent me away and said to wait and see. Things improved slightly but it then returned (it comes and goes in block periods). I then started to get burning sensations in my legs.
I am now experiencing weakness in my arms and hands. They don’t feel numb or tingly and I haven’t lost much strength when lifting etc but when I use my hands, i.e. washing up, mashing potato etc. they tire so easily and I drop things all of the time, even really light things. I don’t get the sensation I am about to drop something, things just go or my grip goes and I send the item flinging sideways. I am also noticing my speech is going a bit funny, in my head I am saying the right word/s in the right order but it comes out totally wrong. It has only happened a handful of times but it really freaks me out.
I have posted on an ME forum as I thought it would be a common symptom but no one has responded. I have had numerous blood tests over the years which are fine, my bowels have had bouts of nastiness which I have had investigated.
I just wondered if anyone has experienced this kind of weakness, parasthesia? Did it turn out to be anxiety?
Thank you in advance.