Forum

A & E Visit

My eyesight went really weird about 2.00 this afternoon whilst lying watching telly.  Suddenly got like spit screen, lower part of vision was completely distorted but the upper half was ok.  Anyway my husband got really concerned and took me up to A&E.  After a 2 hour wait got called through by a gentleman who I thought was a porter, turned out to be the doctor, he looked like he needed a few pints of blood and a hospital bed.  He didn't speak to me for about 10 minutes and was busy writing then said "well, as you have MS this kind of thing happens, I will write to you GP and tell him you have been here".  Anyway that's about it so everyone remember 'if you have MS, this kind of thing happens so don't bother with the NHS'.

A little fed up with the system.

Sue

 

thats why i dont go to the doctors its always coz i have ms you know what they say life,s a bich xxx

Poor You Sue, do hope your eyes are better now and can see clearly again. You may have MS as do most of us and that does not excuse the way you were treated. I truly believe A& E are only for people with their legs dropping off! Just like the tv Casualty!!!!

Hope you feel better soon.

 

Janet x 

Hi Sue

 

I do hope you feel better soon, I don't understand why you weren't given steriods to try and relieve some of the symptoms. I was told when diagnosed this year that they have steriods for 5 days at a high dose to try and reduce inflammation. I didnt think the UK did it differently to here maybe I have misunderstood. I only got diagnosed this year.

Really hope your eye sight is back to normal soon.

 

Tracey

x

Hi Sue

 

I do hope you feel better soon, I don't understand why you weren't given steriods to try and relieve some of the symptoms. I was told when diagnosed this year that they have steriods for 5 days at a high dose to try and reduce inflammation. I didnt think the UK did it differently to here maybe I have misunderstood. I only got diagnosed this year.

Really hope your eye sight is back to normal soon.

 

Tracey

x

OMG Sue!  That's a terrible way to treat you - it sounds like you have optic neuritis - yes, people with MS get this, but people who don't have MS also get it, and it's not necessarily the MS causing it.  Sometimes MS blinkers the health professionals, and they don't see past it!  This is a serious condition, and needs to be checked properly, please see an optician at least - it probably is your MS, but there is a chance that it's not.

Luisa x

Did he/they check your eyes at least? If not you need to complain,speak to PALS,for starters and see your GP about it,explain you are not happy with the way you were treated ( or rather not treated ).

 

I hope your eyes have improved by now,take care,xxjo

hello

Hi, i get this happen to my eyesight now and then its an occular migraine, its really scary when it first happens,  i am used to it now,but it still scares me  a bit when it happens,

i dont get a headache with mine either, some just get the visual disturbance,  some get the headache too, i get the 'split screen' effect and flashing zig zag patterns,mine lasts for about 20 minutes and then my vision goes back to normal.

and i find when i am under stsress its worse.

 

jaki  xx

Hi Sue.

Could I suggest, that you contact the following to see if you can be put on this register.

I must stress that it is a trial scheme, I was included on the scheme, via my MS specialist nurse.

It is 24 hour, 7days a week service manned by, consultant MS Nurses, the scheme is there to give you specific advice on any emergency problem you may have with your MS, , and if necessary, help with getting/arranging emergency treatment. Plus advising your own MS Nurse of your situation.

Neuro Response: Telephone 0203 448 1102.

As I said above, this is a trial scheme, at this time, and I don’t know if you can just register yourself, or if it has to be arranged by your own MS Nurse. But maybe worth a call.

Take care.

Chris R.

I. El. (Eng). (Rtd).

Wonderful A&E, I was told, 'you don't get loss of sensation with MS'.......So, now you know!

Well it was an afternoon out! Waste of time indeed for you and your worried hubby.

Has your eyesight returned to normal now? I hope so.

luv Pollx