Just now, I’m very cheesed off . I’ll soon pull myself to get her but I’m sick of fighting!
I’m sick of the daily struggle to do the things I used to take for granted. Showering, dressing, everything really. I can’t live independently.
I’m cheesed off that I am just expected to accept there’s no cure, there’s no treatment, and there’s no support or help with anything.
I had to fight for DLA, no doubt I’ll have the same problem when I have to apply for PIP, and I’m dreading it. I had to fight for a blue badge.
I don’t have a neurologist or MS nurse. I’ve been refused social services assessment.
I’m doing my best, but I’m losing the battle.
i was told nine years ago my MS was mild and it would be many years before I needed a wheelchair. I bought a wheelchair soon after that. My deterioration is steady and shows no sign of slowing or stopping.
I look well though, I’m sure people think I’m a fraud. They’ve no idea how rotten things are.
Rant over. I’ll cheer up soon!