Just as I get used to how bad it is, it gets worse. The last few days have been awful. I can’t do much at all now, and struggle with the most basic tasks, getting in and out of bed, dressing and feeding myself to name just a few.I’ve not been able to drive, live independently, get around unaided for some time now. It’s nine years since I was diagnosed, and three different neurologists have trotted out the word “mild”. One even predicted it would be twenty years before I needed a wheelchair. He was way off the mark with that one, I bought my first eight years ago, and have used one pretty much all the time outside of home for seven years, I’m now resorting to it more and more at home. At this rate it won’t be long before I’m confined to the blasted thing. I could go on and on about what I can no longer do, but I’m sure you get the idea.
I’m not looking for advice or sympathy, I just wanted to voice my feelings.
When I was first diagnosed with mild ms, I wasn’t too alarmed, surely that meant many years of little or possibly even no change, and I rather naively believed that there would be help and support. I was way off the mark there too.
Time to stop feeling sorry for myself I think!