8 weeks since last infusion & feel awful

Everyday living
1

After 7 very successful years on Tysabri, Im now jc positive so Im being moved on to Ocrevus. My last Tysabri infusion was over 8 weeks ago & I feel awful!

I was originally on 4 weekly infusions but was moved on to 6 weekly 2yrs ago. I noticed from the very beginning that on the run up to that 5 & a half 6th week mark that I would start to feel really run down and Id perk up the day after I got my infusion.

This is now the longest Ive been without my infusion and I feel absolutely exhausted and run down. I am starting Ocrevus next week thankfully but I just wondered if anyone else has experienced this when theres been a big gap between doses of meds??

2

Hi Steffybeth. I haven’t had any big gaps between meds ( and I’ve been on the same one , a weekly injection of Avonex, for over 16 years now). It might be in my mind and not real but, yes, sometimes I do feel as if I’m struggling a bit after the 7th or even 6th day.