Hello all, I’m so glad to have found this forum as tbh I’m really freaking out!
My symptoms started around four years ago after my daughter was born, I put it down to having a new baby, the tiredness, pains and this foggy feeling in my head. Two years later the symptoms had worsened and had developed more. So I went to the dr and they thought I had fibromyalgia…shortly afterwards I separated from my husband and was a full time single parent and moved back to my home town the other side of the uk. The point I was trying to make is that I didn’t have the time or energy to think of me as everything went on my little girl for the next two years…which leads us to now. My symptoms have worsened…most mornings my arms and legs are numb like pins and needles it’s like they don’t belong to me and I can’t move them really until the sensation comes back…I’m constantly exhausted, I’m always forgetting words mid conversation and this overwhelming feeling of just being lost (in my mind) when I’m out and having conversation with people. I get a weird sensation as if my limbs, joints etc are tearing (like typing this on my phone my thumb to my closest finger feels like it could just tear away?) my brain just doesn’t work anymore and as I’m always loosing my balance or walking into things or falling down, getting light headed etc plus weird things like putting my kids shoes on for some reason I seem to put them on the wrong feet?? Oh and my penis has shrunk to half the size??? Plus so much more…I have spent a year begging my dr for help or for tests with no help so I asked to see another dr and explained the symptoms and he has referred me to a neurologist for MS.
i have been googling like crazy but nothing beats speaking to real people, I haven’t really spoken about this to anyone before as it’s all so new plus the way I am atm I tend to focus on my daughters social life so she can have the most fun as I can’t seem to hold a conversation these days. So I’d be ever so grateful if any of you could help me, is this how yours started? How do I slow down these symptoms, dr gave me Amytriplim but it’s not touching any of the pain.
I guess what I’m most afraid of and really asking is how long before I’m bed ridden? I don’t know how long this takes and I’m scared for my little girl so any help or advice would be so very much appreciated please.
ps I’m new here and new to this so sorry if the above is too much just this has been going on for years and I haven’t got anyone in my life with ms (luckily) so that’s why such the long post as I’m desperate