I’m new on this forum although have been browsing for a while. I had an episode of double vision in May which cleared up after about 8 weeks. I was rushed for an emergency MRI which showed localised inflammation but thankfully not my biggest fear which was a brain tumour! I was so relieved that although MS had been mentioned I hadn’t given it a huge amount of thought and my neuro/opthalmologist had reassured me it was unlikely due to the lack of other symptoms and no family history. I then had evoked potentials tests (all normal) followed by a lumbar puncture which has revealed othe presence of oglioclonal banding in my CSF. It was of course a bit of a shock to be told by the neurologist that there is a high chance that this is MS. However, as I have only had one episode and no other symptoms I don’t meet the criteria for a formal diagnosis.
The neuro has told me that it could be years, if ever, before I experience another episode. Or it could also happen next week. The unpredictability of this disease is what is scaring me the most. I feel like my future is so uncertain, I don’t know what to expect or how to feel or what to say to people. The fact that I feel completely well and have no symptoms makes it even harder in a weird way!
I know noone can tell me what is going to happen or when, but I am thankful for a place to vent my feelings to people who I know will truly understand!