Im really struggling at the moment and hope I can get some guidance and advice from you all.
i have had a concoction of ailments over the past 10yrs and have been diagnosed with a few different ailments. In 2012 I lost the sight in one eye for several weeks. My GP then suspected MS and sent me to neurology. I was promptly discharged in 2014 (long waiting list).
The once again lost the sight in my eye accompanied with severe loss of feeling in one side in 2016. I was once again sent for an MRI. This time I’m told that I fulfil the McDonalds criteria and have several lesions in bran and spine. How ever they would like to watch and wait. Had a follow up in 2017 and once again told to watch and wait.
Had a follow up this year after 3 episodes of ON and several other worries numbness, pins and needles, severe exhaustion, dizziness, severe hiccups when eating neck spasms, sudden onset of severe Reynolds syndrome and severe digestive problems . Although many of these problems are quite generic the ON was diagnosed by the hospital Ophthalmologist and I still had damaged sight .
So at my appointment I have been told they would once again like to watch and wait another year and no more tests are needed.
When questioned about my sight I was told I may have to just get used to it and the other things are “clearly not neurological so no need to worry”.
I was not expecting a diagnosis of any kind today or in the near future as I know these things take time. I was however expecting some help and reassurance that I may not lose my sight. Instead I have come away feeling like I have wasted his time and I am a hypochondriac.
What can I do next? Do I just wait? I can’t understand if I fulfil the criteria how can I now just be left to struggle?
im so sorry for whittling on but this has really got to me this time
Thank you for listening.