When I first joined mine it was bingo or quiz with some more bingo and quiz and to be honest I thought I walked into
Help the Age branch. No info on MS leaflets any information about MS at all.
For a 40 year old it really was not for me and was was about to go and not go back
Couple of guys (my age group) said we need younger people as you can see the problem and we want to go out to pubs, days out etc.
Well in sept about seven of us started doing the GYM and have kept that up since Sept 11, we as a group within a group also do coffee mornings, odd lunch and even network with another MS branch to see what they get upto.
My problem is 80% of people turning up at branch meetings have been claiming a pension for years and happy with Bingo or a Quiz or some old lady singing 1940’s period war songs and trust me it was not entertaining also, found out alot of them
don’t even have MS but come due to a lost love one or brother etc.
Its a real problem for the newly diagnosed which we want to help with emotional support and anwser any questions they may have and allow them to have a social life if they want it.
Our little 40’s group has been great, we feed off each others energy, support and push each other and a great friendship has grown with all of them.
The problem is we are to young and determined with dreams, ideas and refuse to give in to the MS which the branch is not geared upto the needs of people with MS who are under 50, so I’m trying to get ideas or say other branches do this why can’t we with the committee.
Our 40 group decided to have our own xmas meal and drink as the branch did not do anything, other branches gave out fruit hampers to its members.
Oh we got a Raffle which we paid a £1 a strip at Xmas with the possiblity to win some wine or coasters
So this my/our problem, what multiple things to do which will be suitable for all ages or have seperate group for the more active who want more.
Oh for reference we have a PPMS in our 40’s group it not just for the walking or hobbling.
Sorry for long post.