Yes I’m new at this my wife has Ms and I’m really going through it she had it for five years now but went with out treatment for the first year and a half because we was separated and our kids was taking her in and stealing her money and put her on the streets until one day my son called me and said I found mommy and she is at my house do you want to come over and talk to her and when I got there the first thing he did was show me her pua app on his phone so I knew right away what his plans was so I went home and froze her account and when I did that two days latter my son dropped her off at my apartment at 7 in the morning and left her on a chair out side my apartment and ran to his car it been four years now and I still have her living with me and had her start treatment right away she is now taking kesimpta and yesterday she woke up in the morning and she said that she can only see a bright light in her left eye and I’m so scared for her and I’m waiting for the eye doctor to get back to me I’m praying so hard that this is only a temporary thing with her left eye and I’m so stressed out that I’m literally going crazy so if anyone has any advice for me and her I really need to talk to someone that dose please it her 54 birthday tomorrow and I’m just so afraid for her so please anyone get back to me please
Hi Anthony. Sounds a grim story. I don’t quite understand why treatment didn’t start immediately- was she not encouraged and prescribed by her neurologist?
Are you based in the UK? If so then your wife could contact her MS Nurse about the problem with her eye and discuss optic neuritis.
(Not that it’s any of my business but I would remove my children from my Will if they were stealing from me, my wife , ex wife or anyone)
hello!
No Hank we are in the United States and we was separated for 12 years and the people my wife chased to be around was all people on drugs like her boyfriend I have pictures of my ex wife before she was diagnosed with Ms of the beatings she had received from her boyfriend who had her smoking meth and other drugs my one son did take her to the doctors in the beginning but never followed up and I was not in the picture then but as soon as he dropped her off at my apartment when he found out that I frozen all her accounts is why he dropped her off to me I thank god every day for bringing her back to me and the day i got her back I took her right to Jefferson hospital neurology for MS and they started her treatment but the stuff I have experience from the doctors at Jefferson hospital was unreal never answered any of my questions that I had just examined her and put her on Ms medication so I decided to take her to Pennsylvania hospital neurology and they ordered a mri of her brain and back along with a lot of blood work as soon as the test came back the neurologist told me she was on the wrong medication and he changed it to kesimpta once a month injection so it’s really a shame when you just don’t know what doctor to believe just in real
That is indeed a grim and sad story. My best wishes to you and also to your wife. I hope she finds some stability and peace in her life