Hi again
I’ve read that sometimes symptoms can get worse before they improve or settle down , anyone found this in the first year of diagnosis?
Returned to work this week after diagnosis 5 months ago , leg pain was a bit of an issue also tingling increased, tiredness has kicked in also,
I can’t stop my thoughts going to a dark place of progression even though it’s only been 5 months living with ms , I’ve had 3 sub cut injections of tysabri so think that should be effective by now but definitely feel things are a little worse than a few months ago is this normal?
Thanks
I was diagnosed in December 2023, and didn’t start treatment until oct 2024 through no fault of my own! It’s taken from oct to March and I now feel like I have a little more energy. Be kind to yourself and give it time. I recently completed a 6 week group physio to help with fatigue, I try to do exercises daily to ease this. I try to eat a healthy balanced diet, maintain a good sleep schedule as this all helps. I hope things settle down for you, and give them time. x
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Tiredness, overheating, exertion and fatigue and illness bring out (partially and temporarily) all my old MS symptoms, even the ones that don’t normally trouble me day to day. Maybe something similar is going on for you?. Going back to work is a big deal and you’re suddenly putting a lot more strain on your system. With luck things will settle down when you get back in the swing of it.
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Thanks both
Understand what your both saying , perhaps ive been reading to much up on progression I know it can be a slow process for most with rrms and when on a high efficiency dmt but I’m my own worst enemy and think the worst 90% of the time
Work has been good and let me return 3 days a week I done very little perhaps it was just the long day that wiped me out , this knee pain is getting on my nerves though might have to chase up rheumatologist as blessed with arthritis but not sure if it’s a ms thing
Least the suns out 
Thanks
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I am not well informed about the technical ins and outs of progression and don’t feel it would help me much if I were. The thing about natalizumab for me is that it’s a ‘file and forget’ med - once you’re on it you can stop fretting about whether you need to switch up to something stronger because you already have. What I have tried to do is to let the drug do its stuff while I concentrate on my side of the bargain - getting the lifestyle things right - nutrition, exercise, sleep, time outdoors, all that. There was plenty of room for improvement there in my case - still is - and trying to get those things right is all part of the picture of staying as well as you can be. Which I suppose is a gentle suggestion that it’s a good plan to concentrate one’s attentions on the things that one can do something about.
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I’ve been to the gym this morning my diet is pretty in check no dairy no sugar a lot more fruit & veg than before diagnosed and weight is good
I think I was hoping to be like some people I’ve read up on who returned back to normal after their first relapse bit stupid of myself really , I’m going to stop looking up anymore internet information on progression as like you say there seem little benefit in doing so , it started after seeing someone who I haven’t seen in couple of years had declined a lot 
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The people who return back to normal aren’t likely to be the ones on Tysabri, I’ afraid. I don’t know that, but would place a tenner on it. I remember in my early days catapulting between exceptionalism (I’m the one who will win at MS) and catastrophising (better get the doors widened). Both wrong - still - 25 years on.
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Yes exactly what I’m doing , wish I had your vocabulary to explain it though 
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As ever, Alison is so very right with her words of wisdom.
I am 16.5 years with ms and am still able to do all I did (albeit retied from work now)
I totally get exactly how you find yourself thinking of the “what Ifs” as I am guilty of but I am determined (hubby calls it stubborn- ha) to not think of what I can’t do but concentrate on what I can do.
We are just in from buying a new rollator, I got a scooter last year which is great but I want to walk more if I can and the NHS tripod just wasn’t doing it anymore.
I will let you guys know how I get on.
Keep well everyone.
Much Love
Maryx
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I’m guessing that your experience is mainly the result of returning to work. All sorts of things can make symptoms temporarily worse. Heat,cold, tiredness , worry plus infections. You might well find that once you settle back into the routine of work your symptoms will also settle down
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Shay1, be kind to yourself and don’t try to overdo it. On the day I work I don’t exercise otherwise it would impact too much on my fatigue levels. It’s about getting the balance right otherwise you crash and burn.
You can speak with the OT about ways to deal with your fatigue , I know there’s medication out there to help.
I’ve never fully recovered from any relapse, and all those symptoms are exacerbated but heat and the cold. It takes time , and the internet can make things worse. We are all different, and MS affects us all differently.
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