I just thought I’d post this for anyone worried about starting Gilenya.
I was really worried because of what I’d read about people’s experiences of their heart rate and blood pressure dropping through the floor, instantly becoming ill etc etc.
I started taking Gilenya on Friday and I feel no different at all. I was hooked up to an ECG machine and monitored for 7 hours and to be honest I did feel a little bit lightheaded and my heart rate did go down a bit but if I wasn’t watching the machine I would’t have noticed! I haven’t had any of the listed side-effects.
Of course it’s bound to affect different people in different ways but I was so worried and then so relieved that I felt I should post something. Don’t believe everything you read!
It’s early days regarding infections etc but when I asked my MS Specialist Nurse, she told me it only suppresses the T-Cells. What I didn’t know is that there are a whole raft of other cells in your immune system which it doesn’t supress and these all fight against infection normally.
My experience of Gilenya (so far) has been positive. Time will tell how effective it is against reducing relapses but I am optimistic.