Hello, everyone, and I hope you’re all well?
I’m currently in the process of being diagnosed with something. I’ve been going through something for just under a year, and I’ve never been so scared. I should preface this by saying, I’ve no idea if these symptoms are linked, or separate issues.
Started one morning when I woke up before my alarm clock with absolute paralysis of the entire body except my head. This wasn’t psychosomatic. If a person put a gun to my head and told me to move, I wouldn’t have been able to move.
This has happened a few times in the morning since then, but also late at nights. At nights, I can feel the symptoms coming on. My arms and legs feel like they’re ripping and tearing for an hour, and then it’s absolute paralysis. I should note this tends to last for about 2 hours, at the end of which, I sustain a short term, but very obvious, waddling gait.
In the past, I’ve also had on/off slapping gait. This has happened primarily after crossing my legs on public transport and lasts for about 15 minutes or so. This has also happened sporadically without leg crossing about 3 times in the last year - again, not for long.
I’ve lost about 10 kgs in the last month.
On/off tingly feeling in my feet/calves/hands for over a couple of months.
For the past month, I’ve had twitching everywhere, but a lot of the calfs and feet.
Eye floaters which I’ve noticed in pictures of my eyes. Can notice them through vision when staring at light, and then my phone. (I’m awaiting an appointment with an optician to see if this is Optic Neuritis).
Postnasal drip for a few weeks.
I’ve been clumsy with light things in my hand for a while now.
I’ve stubbed my toe on the floor a few times in the last two weeks, and sort of tripped.
On/off thumb pain and weakess for a couple of weeks.
Random shooting pains up my right calf for a while now.
I should say, my Dr was under the assumption I had Perioid Paralysis which explained the muscle paralysis, however, we need to wait until an “attack” to be sure. He also said, that didnt explain a single one of the other symptoms. He said it’s likely to be MND/MS.
I REALLY don’t mean to diminish your troubles, but the idea of MND is killing me. I’ve barely slept since Wednesday, and was hoping anyone here could identify with my symptoms.