Now I don’t want to be all maudlin, but I’m curious about what scares people the most about having MS. I think to most on the outside, it conjours up images of crutches, wheelchairs and the like, but strangely this isn’t what scares me the most (although it does worry me!).
My fears are:
Losing the ability to speak properly - my last relapse had my brain and mouth disconnected like I was drunk and trying to concentrate hard to get my words out, then what came out was either too quiet, too loud or slurred (or all three!).
Losing my vision - sight problems was my first symptom and I had to stop driving until it returned. With my kids going to nursery, swimming lessons and music classes, none within driving distance, this was a nightmare!
I guess it’s just a loss I independence fear really! I also worry a lot about how this will affect my boys - they’re so young (4 and 2) and still very dependant. I just want to be as well as possible for the next 15 years or so to be able to do what ‘normal’ parents take for granted!