This statement was one that i was not expecting! Correct me if im wrong, but i was under the impression that myelin treatments that are expected to appear in the future are to repair myelin and disability, not just to slow down or stopping progressive MS.
What do u think?
I guess it depends on how much damage has been done. If the nerve is already dead, I can’t see how it is going to help.
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Can I ask ‘who is Anna’ and where is this statement from?
Currently there are no myelin repair treatments so it’s impossible to say what future treatments might or might not be able to do!
Ok, yes there are no treatments yet, but it puzzles me Anna’s certainty on how myelin repair will work!
Here is a link from where i got Anna’s statement. I have no idea who she is, or what her expertise is.
This is a reliable source of information.
Nerve cells (neurons) | MS Trust
Remyelination research: what it means for people with MS | MS Trust
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Ok - she is right to say that if there is no nerve then that’s it but I would think that even if there is some remnant of a nerve / a thin bit of undamaged nerve it could well be possible to remyelinate it .
I’ve no idea how frequently MS completely destroys our nerve fibres ( in addition to removing the myelin coating).
Many thanks . Some useful information on trying to protect yours nerves through diet, supplements etc
I do try to follow a ‘brain health’ diet. Sometimes slip but overall I eat a good mix of greens, berries, fruits , seeds , unsaturated fats/ oils, plenty of salmon and similar etc. also cut out anything high in saturated fats
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Is there a way to find out how much of our nerves are in good condition or not?
I think we share a similar approach to stuff like diet and exercise, although it’s easy for me because I actually prefer it.
Doing something positive to improve general health must be a good idea.
I really don’t know but I suppose MRIs and nerve conduction tests show part of the story. More generally, I guess that cognitive function tests say a lot about general brain health- I do a short one from time to time on the Food for the Brain website but there are quite a few around .
Following on from your post I’ve been looking at ‘nerve growth and regeneration’. Apparently regrowth of peripheral nerves takes place naturally and successfully but regrowth in the brain and spinal cord is different and difficult but there is a fair bit of research into this ( don’t think it is concerned with MS but e.g stroke and other damage to the brain). Who knows, at 71 years old it’s not likely to be in my lifetime but one day there might be treatments to help repair and rebuilding of damaged areas / nerve cells in the brain.
In the meantime , omega 3 fats, Vit B12, anti oxidants and anti inflammatory foods along with exercise seem to be the best option for supporting nerve and brain health
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Hi there and yes doing things to improve general health is most definitely a good idea. Typical meals for me are a breakfast of raspberries, blueberries, flaxseeds, chia seeds and pumpkin seeds plus branflakes. All with Oat ‘Milk’. Cups of tea. Lunch might be sardines with tomatoes and perhaps olives in a toasted bread sandwich, or Houmus and tomatoes sandwich - for which I use olive oil rather than butter or spread. Dinner would be chicken or fish with various greens but sometimes that gives way to oven cooked fish and chips. No breakfast today but ‘Brunch’ was a salad of tinned tuna, green beans, small tomatoes all mixed with olive oil.
There used to be a cafe/ restaurant in Glasgow ( I live near the city) which served eastern Mediterranean meals that happened to be vegetarian. It was wonderful - very tasty and healthy- but closed down over some dispute about the lease
I am on my last nerve. Sorry, excuse my MS humour. Anyway, I heard that there is some research on merformin plus an antihistamine that apparently may regenerate nerves. I say MAY because they are still testing it. Xx