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What else can go wrong?

Hello sorry for this but I need help big time.

When I last went and saw my MS nurse I told her about the lack of sex drive so she had a word with my gp to see if he could help.

He sent me for blood tests and they have come back nomral so he has said it is all in my head but I know it’s not. I don’t even want cuddles of my children now it’s got that bad.

Then to top it all off when I last saw my GP about going on to a new pain killer that the pain clinic has told me to start taking as well as the other ones they told me to take. But my GP took me off all the tablets that I was on and he even told me to stop taking the mutli-vitamin I take everyday cause it wasn’t helping me so he said. So I have gone down from taking nearly 20 tablets a day to now 6 a day. And the best bit is I wasn’t even offered the choice to come of them gradually. It was a you stop taking them now and thats’ it.

So as you can imagine I have been all over the place with pain etc. So at the moment all I want to do it cry and give up but I have been told that I can’t do that.Coming off the tablets has hit me that bad that I have real trouble keeping a drink of water or anything down and I have lost my appetite completely and I don’t want to eat.

I just don’t know what to do anymore with it all. It’s so hard to explain to someone who hasn’t got MS how it feels to be like this everyday.

Thanks for any help anyone can give me

Allie x

Hi Allie

I would go back to your nurse or neuro and ask them to contact your GP and explain why you needed the medication. It doesn’t sound as if your GP knows very much about MS - how can he just take you off all your tablets without any proper explanation or any alternative?

I don’t consult my GP about the MS. I always discuss things with my nurse or neuro first and they write to my GP suggesting medication that would suit my symptoms so that when I need them they are already on my file notes at the surgery - so my GP is only ‘rubber stamping’ what has already been approved. I do it this way because I know that my GP doesn’t really understand MS and doesn’t know what drugs are suitable. This bypasses any unpleasantness and misunderstandings.

Tracey x

Oh Allie, I do feel for you.

I dont think it is wise to just stop any tablets without weaning down. I am shocked that a doctor said to do that.

is there another GP in the surgery you go to? If it was me, I would try another one, as the regular one isnt really helping now, eh?

Not wanting sex, is one thing, but not wanting cuddles from your children is something else, i would be concerned about.

I think you need to get a different GP.

luv Pollx

Allie, Your GP sounds like a bit of a Muppet! When I’ve had to stop taking meds my doctors always tell me to reduce gradually. I’m with the other people who’ve posted, time for a new GP if you can. Thinking you ((hugs)) Sara x

Wow, you shouldn’t just stop any medication. I’m particularly concerned that your GP told to to stop taking pain meds which had been specifically prescribed by the pain clinic , this is arrogant and potentially dangerous, no wonder you’re feeling so ill.

I hope you’ve managed to get hold of your MS nurse or someone who prescribed your medication and got some advice now.

The MS Society have some excellent information on sexual issues associated with MS http://www.mssociety.org.uk/what-is-ms/signs-and-symptoms/sexual-problems/managing-sexual-problems or you could also ring the MSS helpline for advice 0808 800 8000.

I’d certainly see a different doctor in the practice in future or consider changing to another surgery.

Good luck.

I am absolutely horrified by this! It’s plain dangerous, never mind heartless and completely unprofessional. “Physician do no harm” is clearly a concept that this GP has managed to forget in his/her zeal to cut budgets :frowning: I recommend speaking to the Practice Manager, your MS nurse and neuro. If that dorsn’t work then PALS and, if necessary, the GMC and your MP. Then I’d get a new GP. No way no how would I stay with this one even if I was paid to! And WTF is he doing just saying that your sexual and emotional problems are “all in your head”?! How is that supposed to HELP?! If its a psychological problem, then you should be referred to a psychologist, not dismissed out of hand. I really hope that you make a formal complaint. His behaviour is disgraceful. I hope you can sort it out very soon. Karen x

OMG Allie,

I only just picked up this post. I can only re-iterate what everyone else said on here. What the hell is your GP playing at? How dare he/she say “it” is all in your head? What is “it”? Certainly, at the very least you need to complain to your practice manager, but I think you should not see this doctor again. It is no excuse whatsoever when GPs say they don’t know much about MS. It is their responsibility to bl**dy well find out. And to just come off medication, well!! ( Steam coming out of ears).

It all smacks of a doctor who is taking a large salary without any effort whatsoever. Don’t stand for it. Despite their alleged large brains, some have no common sense and need a large kick up the rear.

Be strong

Alison x

LOAD OF CRAP MATE … BLOOD TESTS WOT YOU HAD PROB DONT LOOK FOR TEESTOSTORON … BECAUACE ITS A FULL SIRING FULL OF BLOOD JUST FOR THAT ONE TEST … I KNOW I WAS SAME AS YOU FOR 23 YEARS LONG STORY … SHORT END AM NOW ON TESRTOGEL 50 mg '/ in 5 mil … FEEAL TOP NOW , WAS ONLY PRODUCING IN BODY 2 mg a day … AM A DIFFIRENT MAN , GO TO DOC AND DONT WAST 20 YARE S …

Talk to your consultant - in a similar situation mine wrote to my GP (now ex-GP) saying basically i’m the consultant you are only a GP - I said this is to be prescribed so prescribe it! and my GP did… that’s not why he’s an ex-GP I moved house!

Going anon because I don’t want to put my current GP off - he’s good.