Hi everyone, hope you’re all as well as you can be. I just wondered what some of you take for your ms, I have rightside weakness in hand/leg toes and have foot drop. I have in the last week started to get a pain in my left foot(heel) I take Gabapentin but the doctor has reminded me today that it can only be taken for a few months. I just wondered what else works really 
Hi Littlun!
I have been on amitriptyline for years for nerve pain and swear by it.
Tried pregabalin, which did nothing. Baclofen reduces stiffness/spasticity, but can make you too wobbly!
Boudsx
Hi Bouds, thank you for replying. I was on that medication before I was diagnosed with ms. They were treating me for pain in my knee which ended up being part of my ms. I wonder whether I should ask about that, I was only put on a low dose and maybe didn’t give it a chance. Angie
I’ve been on Gabapentin, Amitriptyline and D3 since 2013.
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Hi Litleone,
I received my dx +20 years ago and I’ve been taking amitriptyline regularly since then; I try to only take at night as it does make me drowsy which isnt dosent help with my fatigue but I find it helps with neurological pain.
I did use Rebif for 21yrs but stopped this in 2021 and I will be having my 1st Ocrevus infusion next week; should have been last week but found out I had uti on morning of the ifusion (sh@%!).
Since 2021 covid and issues seeing my neurologist and then having a bad relapse last year my neurologist said I should take vitamìn d (2000ui) which I take alongside multivitamins each day.
I’ve recently been prescribed trospium chloride 20mg; this is helping with a bladder issue & since talking to the infusion nurse regarding the uti I’ve just started taking d-mannose capsules alongside antibiotics which I will continue with going froward.
Take care
Vke
Hi, thank you so much for replying. I take gabapentin, vit d and b12. Thankfully I haven’t had much of a bladder problem apart from when I need to go I have to go there and then. Think some of that is going through the menopause as well 
I had my 1st ocrevus infusion in December and tolerated really well. I hope yours goes well. Take w:heart:
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Hiya Littleone,
My bladder issue is exactly like you which is why ms nurse spoke to me about getting gp to prescribe Trospium which does seem to be helping.
Like yourself I’m also going though the menopause along with a couple of gyne issues so right now I’m backwards and forwards to the hospital between MS and gyne appointments whilst currently not being able to drive which isn’t helping my stress levels.
Spoke to the infusion nurse this afternoon and mentioned I’m a little anxious that when I go for my 1st infusion next week another urine sample is going to yet again delay things so my plan is to do a sample Monday and if there’s an issue then gp can prescribe more antibiotics- with this way infusion nurse said infusion can go ahead ~ yeahy…I hope!
So how did your first two infusions go; any issues on the infusion days, first few week’s, months ~ good or bad?
Take care
Vke
Hi, yes needing the toilet quickly isn’t great is it. Maybe I should see if there is something I can take to help. Honestly don’t worry about the infusion, the nurses are really good and make it really easy for you. I had no issues, a bit sleepy during the infusion itself but that’s it. A bit tired in the weeks after but that’s it. I have my 2nd one in June. Take care
With regards to your bladder issue it might be worth mentioning the Trospium Chloride to your MS nurse?
Ummm, the toilet challnge is a pain in the ass and for me one of my biggest issues, last year I needed an ultrasound of my bladder and had to make sure I had a full bladder…not good so I got to the hospital for my appt 60mins early armed with 3 drinks.
When I got to see the person they were great in that they did the 1st ultrasound needing a full bladder first then gave me a comfort break and then did final ultrasound all of which have highlighted a few big issues (not ms related) which I’m trying to deal with.
Glad to hear your infusion (s) went ok and that aside from some tiredness you didn’t have any issues which I’m seeing as positive; fingers crossed for me next week fingers crossed 
Take care
Vke
I will mention it to my ms nurse thank you. My biggest issue is my foot drop, it’s a big problem for me. I will have my for your infusion and that it goes smoothly 
I take 50mg amitriptyline at night.
bouds
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While I believe FES is by far the best solution for foot drop, I was given an Affix brace by the NHS, which might be a faster alternative if the problem is not too bad. It looks the same as a Boxia, in case you get offered one of those instead.
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Hi, I really hope your infusion goes well this week it won’t be as bad as you think it will be 
Hiya Littleone,
Thanx for your message; I’m back on antibiotics due to another uti but at least now I’m bck on meds the infusion can go ahead which is good.
I’m sure I wont get much sleep Wednesday night but my daughter is staying over that night so maybee having company and a few drinks may help(lol)! ~ I’ll let you know how it goes.
Take care
Vke
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Hi littleone
Im currently on gabapentin for nerve pain and amantadine for fatigue,im also on 6 monthly ocrevus infusions.
Thank you for replying, ahh maybe I need to take something else as well as gabapentin too. I don’t sleep very well, fatigue is an issue aswell. I’m also on infusions, have my second one in June❤️
Hi,
Yes i totally agree sleep is a real problem at the minute, ive also got tinnitus lately which is driving me crazy. My ms nurse and doctors are looking into it so hopefully will get some help soon.
Amantadine has been a real game changer for my fatigue. I call it my wake up pill. It does not work for everyone but it might be worth a try.
My next infusion is in 3 weeks so am feeling a bit rubbish this month.
Best wishes
Wobbly
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Hiya Littleone,
My 1st infusion went fine; no issues which I’m pleased about, the infusion nurse did say I may get a flare up of previous issues but so far nothing (won’t say it out loud…just in case lol!)
How you doing?
Hows the pain in your foot; same, worse, not as bad, gone?
With my most recent relapse which affected my RH side and made holding cutlery a pain in the a@% I ordered some Vive hand exercise balls (4 pack) £8.99 using prime and they’ve really helped getting some strength back in my hands and has helped with cutlery.
I’ve also got my 1st physo in March so I’m hoping do discuss my leg’s (RH worse than LH); would physo possibly help you, it might be worth a conversation with your MS nurse?
Take care
Vke
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Hi Vke, am so pleased your infusion went well. It really isn’t as bad as you think it is going to be
I’m ok, foot, leg and hand are much the same really. Quite achey this week but feel fine in myself. I’ve looked at the hand balls, I’m going to order some thank you. My ms nurse did say it can take 6 months for the infusion to start working I start physio again next week, started it just before Christmas. Was poorly with a cold m, felt fine for a week then got another one so physio was put on hold. Anyway pleased everything went well for you.
Take care Angie