Hello, my partner was diagnosed with PPMS seven years ago in his forties. First symptom was problem with ankle that developed into foot drop and now he is also unable to use his hand on the same side. Over the years he has deteriorated as he is not very mobile and balance is terrible. He is also very depressed (which he will not seek help for). However, getting to my actual point, he has pain in his feet all the time that the Ms nurse believes is nerve pain due to his Ms. He is finding it very difficult to cope with especially when he goes to bed as he says they feel like they are burning. He has tried amitryptiline and another medication (I think it might be gabapentin) but these did not work. I was wondering if anyone else has severe nerve pain and whether you have found a way of reducing it. THANK YOU.
I don’t know whether or not it would be right for your partner, but I was unable to continue with an antidepressant medication due to interactions last year with nerve pain meds. My MS nurse suggested |Duloxetine which is used for nerve pain but has the added benefit of helping with mood as well.
If he is also depressed, maybe this could be something that could help? It’s proven great for my mood, and reasonably effective for nerve pain for me x
Thanks very much for your reply Minnie Mouse, we will look in to that.
Maybe pregabalin will help. I take amitriptyline for nerve pain in my legs and bum cheeks…which works really well.
I am about to go on pregabalin for heel pain.
Try pillows under feet, under knees - in fact experiment with pillows.
the bed looks like a full on battle ground but if it stops my burning feet from hurting (I have MS and burning feet) then the bedroom remains a war zone!
I have a sore back and it keeps me awake, I have acquired a pot of hemp cream although I find it difficult to apply, hoping that once I find a way to apply it, it will turn out to be that elusive magic bullet! (yeah right!)
Hi Esjay, I suffer with nerve pain and it’s worse at night when trying to get to sleep.
Im on pregabalin and 10mg of amitriptyline. The consultant has just increased it to 20mg
but I haven’t started to take it yet as problems with GP prescribing more, when that’s sorted will give it a go!
I agree with Carole about pillows under knees or wherever required. Once asleep I’m okay!
A few years ago I tried gabapentin but preferred pregabalin, so went back to it.
It is a bit of a juggling act with medication etc.
Hope you find what works for your partner, good luck
Hi there, just want to say thanks to all who have replied. Having other people’s ideas and experiences helps alot.
How are things going Esjay? Has your husband been able to try any new meds?