Hi Tina, just to answer your wonderings…yes I am happy now, to live with a dx of ISP…Ive spent too long in the ?????????? rooms. I dont feel the NHS has let me down. They have their limitations. My oldest daughter decribes medics as just someone who has read a few books`…lol! I like that analogy!
luv Pollx
Well guys, thank you soo much for all your lovely replies. Ive had to wipe away a tear or two. Not because im upset, but because of all the support and kindness youve shown me. I always felt I had pals here, but now I know it for sure. Oh, if only you could all come to Elland and visit me. Wed have a right old rave up. Theres lots of parking and wheelchair access for you. Ill even lay on a few Slimming World friendly nibbles. I`m still doing well on it…2.5st lost now)
Today I still feel calm…peaceful about my dx. A neighbour has been in and i told her all about my dx. She asked if i felt nearer to the answer now. I replied, No, I feel I have the answer. it may not be a complete one, but it is one I receive happily, after far too many years of angst, im satisfied`.
I know there are still many out there on these boards, who are still searching and waiting for an answer. I wish you all well and hope your search will not take anything like as long as mine. I also know there are some who have waited even longer than I did. Special thoughts for you.
When we are in limbo, or even after diagnosis, we meet people who for one reason or another, try to tell us about their great Auntie Gertie, who had MS and had a terrible life, or that she had an easy life…MS didnt seem to bother her so much. These badly informed folk dont mean us any ill will, they are just trying to acknowledge our problems, but only end up causing us more headaches. Try not to let those people get under your skin. You live with the problems daily and must do so in whatever way helps you.
A word to those who are at a difficult crossroads, when your condition is progressing and you are thinking about getting perhaps a walker, a commode, incontinence pads, catheters, a wheelchair,a hoist…Ive had or got all those things and use them to the full. Do I hate them...........nah, not a bit of it! Without them i would be bedbound 24/7 and theres only so much Jeremy Kyle a girl can watch!!!
So yeh, I`m defo gonna be sticking around. Where esle can I practice my amateur agony aunt efforts, eh?
much luv Poll.xxxxxxxxx
ps have you noticed I didnt say chuff once? lol.
Aw, I’ve just returned from my hollidoddles and tuned in here to find out what’s been happening and this is BIG news! Poll with a diagnosis!! So glad you can relax now and not do all that chasing anymore. Sounds like the neurologist was very good and about time too. Also very very glad you’re staying on the site - it’d be like leaving your family and that just wouldn’t do!
I’m ‘chuff’-ed
xx
Hi Poll
I am so pleased you have finally got a diagnosis… and your neuro sounds great too!
I hope that this particular neuro will continue to monitor you and offer you all the help and support you need.
It must be a relief after all these years, and I love how your positivity shines through even more now! You are an amazing person Poll and I am really pleased you are staying here as you are a shining example to us all.
Paula xx
Hi Paula and deb, ta for your replies and such kind words.
luv to you both.
luv Pollx
Having a diagnosis of sorts must be a reall weight off of your mind, I’m very pleased your sticking around as you’ve given me so much support since I first joined 
Having a diagnosis of sorts must be a reall weight off of your mind, I’m very pleased your sticking around as you’ve given me so much support since I first joined
Aw shucks Tab. Thanks.
luv Pollx
Hi Poll, I’ve been on holiday with hubby and the kids and have just read your news. After 14 long years, I’m so glad that you’ve got an answer of sorts. I do hope your girls are ok and I’m pleased that you feel the neuro was honest with you. Thanks for staying on I love your posts! Chis
I replied over in the other forum (new diagnosis and before diagnosis) but just had to add something here to add my voice to those of us that are thrilled you’re sticking around these parts.
hi poll
you must be floating on air now.
what a shame that all neuros aren’t as attentive though.
i’ve been lucky. in manchester every neuro has a town where he/she does outpatient clinics.
i built up a good relationship with mine. he broke the news of me having ms
i see an ms specialist neuro now but still see the original one once a year.
i’d love to think that everyone had such luck.
love carole xxxxxxxxxxxxxx
Hi Carole, Dagny and Chis, ta ever so for your replies of support and kind thoughts.
Carole, Manchester is a lucky place to have such a good neuro set up.
luv Pollx
Hi Poll, good to hear you have had some positive feedback at last, bet you feel as though you can move on with things now. Good for us to know also you are still stopping on here, your experiences,advice and humour haven’t changed even if your news has. Suex
Hi Sue, ta for your reply hun.
my replies have gone onto a 2nd page…so many well wishers and good friends here. I feel more settled.
luv Pollx