Hello fellow MS-ers.
I’m new here and seeking…well, whether anyone else has experienced my latest challenge. I’ll start with a bit of background.
I started with MS in late 2004 and was formally diagnosed with relapsing-remitting MS in 2005. It kicked off with O.N. and 12 months on I had a dose of diplopia. Three months’ wearing of a prism on my specs worked and the diplopia subsided.
In many ways, I’ve been very lucky so far. I’ve had O.N. again on a roughly yearly basis, which affected my left eye. This side has obviously undergone axonal damage, so I’ve the dirty pebble glass effect and weak colour vision. At the last relapse, my right eye was affected but nothing like as badly and it’s back to normal.
As regards treatment, I was injecting Avonex once a week for six years. However, I was suffering flu-like symptoms every time and writing off a whole day to this every week was counterproductive. The consultant and I agreed to suspend treatment and I’ve been taking nothing specific for a year now.
Now for the latest fun and games. For the last two mornings, I’ve woken to a peculiar sight. My bedroom’s colour scheme is magnolia and white - usually. But on waking, I see all the surfaces apparently decorated with small, dark blue polka dots. These don’t move, flash or flicker and - oddly - they are in perspective, it really does look as if the dots are there, painted on every light-coloured surface. After about 20 minutes, the dots will fade to a pale yellow, then they are gone.
I’ve had ‘silent migraines’ before. These involve sparkling zig-zags (scotoma) and last for a similar period. There is no associated headache. I therefore have a strong feeling that the polka dots may be a similar/associated phenomenon.
There’s just one caveat. There’s a great deal going on in my life, as follows…
I’m in the middle of a bitter divorce action, which has been going on for over a year - my ex-wife to be left 14 months ago.
I’ve just had an orthopaedic operation (trapeziectomy).
I’ve been taking pills for the inevitable reactive depression associated with the divorce. This (Mirtazapine) was sedating me far too much, so the dose has been halved, to 7.5mg per day.
I have a lot of ‘previous’ for anxiety problems, and occasionally use a small amount of Diazepam.
I have failed back surgery syndrome and have been fitted with an implanted neurostimulator (i.e. internal T.E.N.S. machine) which helps a lot.
As you can see, it’s a matter of can open, worms everywhere. As my MS specialist nurse often says, “Don’t always blame the MS”. So, I thought I’d consult the forum. Thank you for reading thus far.