Yep , harsh , another row because i admitted i dont know how to get out of this debt , my memory is shot like i said , cant even remember talking to people or recent conversations . Its mortifying me and ruining my marriage , relationship with my daughter , everything .
i am getting more confused by the day . I really dont know how to carry on .
Think a shed load of pills is the best option all round x
What ive found is my walking became severely affected in january and then my mind went really foggy . It will not clear , im struggling to go out , to read , to walk , to remember , i can have a conversation and not remember it a few hours later , i am so scared as i feel like im losing it . It just gets worse . A constant pressure and fuzz that never lifts . I cant do ANYTHING !
Oh Gaz don’t think about going down that route!! Nothing & I mean nothing is that bad for that. I too was in a vile, horrible hell, debt the lot. The worry on top of everything else is compounding all of your problems.GET HELP WITH THE DEBT!!! loads of debt charities out there, if you can sort that you will feel 100 times better, honestly. You will be able to cope with the other problems, to be honest the worry will make you feel a lot worse with your symptoms, please get help, ASAP, we are all behind you, I found CAP extremely helpful, they come out to you to discuss your debt & give you an answer, they do all the work for you, they even make sure your creditors are sympathetic, you don’t need to be religious!!! Take 1 step at a time, think your wife & daughter could do with some imput as well I mean it take care Tracey x
Cap dont operate in wales , dont know where to turn ! Pills seem the only option , my quality of life has gone !
Gaz where are you in Wales? I’m in Wales!!! Welsh born & bred! Tracey x
Meant to say they do operate in Wales x
Rhyl x
Cap debt help website says not wales
Wrexham! They really do come out, worth a thought. Other good ones though, they are very understanding to be fair. Pills are really not the answer Gaz. Are you under a ms team? I’m under Countess of Chester & Walton, they are absolutely brilliant, sorry for all the questions, but have you been diagnosed long? Tracey x
Just seen your last post, sorry! I can pass you the number if you like, head office in Bradford, but I see CAP Wrexham regularly x
Ive been diagnosed nearly 8 years , only found out today from my regular gp that as well as the brain and spine lesions i have extensive demyelination in the brain too x
So sorry Gaz, so many posts on here I should have read that it has been 8 years, the results explain your current problems, surely the GP, neuro has offered you some treatment that could improve things for you? Have they given any advice on what happens now? Questions again, sorry! Which hospital have they got you under? I know we are pretty lucky in our neck of the woods, compared to a lot of people on the forum. Tracey x
Im under the walton centre , but got next appt in july but no offer of treatment yet apart from physio referral by my g.p today next m.s appointment in local hospital with m.s nurse , dont know how ill get there and into the clinic tho as i can manage about 10metres at the moment . Shocking , got to wait for physio assesment then details to g.p then appeal with dwp for my mobility claim to be reconsidered again . Until all that happens im housebound x
Ive been on copaxone for several years but am starting fyngolimod next month due to muscle atrophy x
Are you on meds at moment? presuming you are, surely they must know you need to be seen earlier, mind you I’m waiting for appointment to see pain management team there, only been 3 months! My friend, who is going through it,like yourself, was given chemotherapy, she is much better at moment, although she’s having awful problems with Raynauds syndrome. At least she has a degree of life quality back, sure they will come up with an appropriate treatment for you Gaz, let me know if you want caps no, you’ll feel better with that load off you x
God!!! our posts keep getting crossed! I’m on copaxone, nice isn’t it!!! I’ve been upgraded to SPMS, so I wont be on it much longer, nevermind, weekend looms, wine me thinks!!! Beauty of MS, you look pd when your sober, so when you are pd nobody notices! I hope they sort you out Gaz, oh & nice piccy!!! Can’t put mine on, have idea how to do itx
Nice piccy ?? Haha
Oh the joys of m.s i managed to get down the stairs this morning and make a coffee , then plonk on the sofa and stare at the walls , wife off to work , daughter gone to school , another day of nothing to get through , just myself constantly spiralling downward , no wonder my minds all over the place . My mobility has gone from walking relatively well in december to nothing now . How are we supposed to go on ? Im just a burden now . Think my wife and daughter are bearing the scars now . Whats the future got for me ? More disability , more pain , more frustration , its going downhill so fast and there is no let up . On the sick , know i cant go back but waiting for m.s to progress to its next stage is horrific .
Thats the trouble , the quiet freaks me out and the inability to do anything . I really appreciate everybodies support , i think the hard bit is i was diagnosed and got away with a few numbness episodes for 7 years , next time it affected me in december its robbed me of my cognitive ability , my memory and mobility not to mention waiting to lose my job ! So its hard to deal with. Sorry to rant x
Gaz - Your MS is quite likely to be at its worse right now - stress/depression/anxiety whatever you want to call it is the main cause of your problems. This does not mean you will deteriorate - A bad place now - yes - but not forever.
Make sure you take plenty of B vits - especially B12 - this helps with brain fog/memory/depression - now its recognised as the best med to prevent Altziemers - so it is very important. B1 is Thiamine also a must. l am following the latest MedDay trial for B7 Biotin to help with my progressive MS. And l am doing very well on it. l have had ms for 33yrs - and still smiling.
l am an advocate also for LDN - the med that boosts your endorphins - the happy feel good med. Also, l take GABA - which also helps with anxiety and better sleep.
lts worth looking up the benefits of Biotin B7/B1/B12 - LDN - GABA. And of course Vitd3. - l do not take any prescription drugs - did do - and the side-effects were worse then the symptoms they were supposed to be helping. And as for Neuros !!
Your wife is probably very frightened - not knowing what to do. Financial worries overtake sympathy - not that sympathy is the answer - but a bit of understanding would not go amiss.
Keep in touch with us all.
ps. benefitsandwork are a brilliant and helpful site - join them. They will show you how to fill in forms - appeals- apply for benefits you do not know about.