Just a quick introductory post.
At the moment I’m in a limbo zone, between consultants, trying to figure out what is going on!
A bit of history, possibly not all related, but who knows.
Here is my background
July 2019. Emergency surgery a twisted bowel. I was right as rain the day before, so I certainly didn’t expect that the next day! Fortunately no lasting effects, and nothing needed done to the bowel apart from untwist it. 8 days in hospital, then a month recovery at home, then a month phased return to work.
March / April 2020. Start to get bother with my right shoulder, and a weak right hand / arm and a numb right thumb. Eventually I see orthopeadic consultant, who arranges X-Ray. Suspected that I had a trapped nerve in my neck / frozen shoulder causing the issues.
Time passes, and I still continue at work, despite the weak right hand. Repeat visit to Orthopaedic consultant, who arranges an MRI scan of my neck, which gets done 10th July.
Results of MRI showed herniated discs in neck at C5/C6 level, and possible root nerve compression according to the consultant. No signs of lesions in spinal cord.
Towards the end of July, I found my right leg starting to feel heavy. 22nd of July, I found my right foot was starting to drag along the ground (which made for a difficult shift at work). Phoned in sick the next day, then phoned GP who got me admitted into hospital (23rd July), with suspect TIA / stroke symptoms. Various tests carried out during my 5 day stay including Brain CT scan and brain MRI scan - such is getting admitted to hospital over weekend, not a lot happens scan wise. I certainly can’t fault the care I was given though. Also issued with a pair of crutches to get around (I’m only 42!) and given lessons in getting up and down stairs by the physios.
Eventually discharged on the 28th of July, with a working diagnosis of “Functional Weakness”, and with a discharge letter sent to my orthopaedic consultant, and an outpatient referal made to neurology department.
5th August, an appointment with the Orthopaedic Consultant, who then requests an MRI scan of my lumbar spine. (Why didn’t they do that when I was in hospital?).
Mid august I see GP to explain worsening symptoms (both legs somewhat weak now), who takes a blood test to check for Vit B12 / Folate levels. Results come back as being on low folate levels, so folic acid tablets prescribed.
23rd August, I get my lumbar MRI scan, the results of which come back clear apart from age related “wear and tear” according to the orthopaedic consultant who I saw on the 9th of September.
Telephone consultation arranged with neurosurgeon at the Western General Hospital, Edinburgh on the 2nd of October.
2nd of October, I had my telephone consultation with the neurosurgeon, who rather abruptly says there is nothing they are willing to do, apart from writing a letter to my GP to refer me onto neurology department.
So here I am, still in the limbo zone between consultants, still waiting on a diagnosis, and still on sick leave from work. Meanwhile I’m very concerned that I’ll end up getting Ill Health Retirement from my job.
Part of the issue may be that I’m being passed between NHS Fife, and NHS Lothian and the Borders due to me being a “complex case”.
Fingers crossed I see neurology sooner rather than later, however I understand that things may be delayed due to covid19 restrictions.
Thanks for reading!